@pegbyron
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Peg posted a new activity comment 1 year, 10 months ago
Hey Ed—Many thanks for your fast response—you rock! Also glad you’ve done well w/Lemtrada. My ritux experience has been mixed, likely that’s why this report sparked attention. Hope to ask my neuro about it when we talk next (and glad to share whatever I hear.). Meantime all best.
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Peg posted an update 1 year, 10 months ago
@ed-tobias Hey Ed – hope all’s well. Wondering if you have thoughts about the report described here recently from Neurology: Effects of High and Low Efficacy Therapy in Secondary Progressive Multiple Sclerosis…describing no longterm advantage with heavier meds in reducing MS disability progression. That seems like big bad news for a lot of us.…[Read more]
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Peg's profile was updated 2 years, 1 month ago
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Peg changed their profile picture 2 years, 1 month ago
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Peg replied to the topic COVID Vaccine in the forum Coronavirus COVID-19 Information 2 years, 2 months ago
Hello—unhappy to report that it seems my MS treatment (rituximab) may limit protection of my covid vaccine. A recent John’s Hopkins study focused on transplant recipients shares this kind of concern. A month after my 2nd Moderna shot, my doctor recommended I get an antibody test; results were negative. I hope we’ll find out there is T-cell prote…[Read more]
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Peg became a registered member 2 years, 2 months ago
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Hi Peg,
Welcome – loads of info, research & experiences on here.
You can also start topics – my fellow
moderator Ed Tobias explains ‘Posting Items’ at the top of each Forum.
Cheers John
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I’m a believer in the hit it early, hit it hard philosophy of MS treatment. Based on my personal experience, I don’t believe this study. As you may know, I’ve had MS for 40 years. In December of 2016 I started treatment with Lemtrada…probably the heaviest of the heavy DMTs. At the time my MS was considered to be inactive SPMS. I…
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