@rosalind
-
Rosalind replied to the topic cognitive MS only – and weird symptoms in the forum Welcome – A Good Place to Start 1 year, 6 months ago
I love your attitude, no wonder you have accomplished so much and seen so much. I retired at 59 becasue I realised I was no longer able to analyse, think , plan, decide at my usual level. Had no idea what was wrong but its given me so much time to enjoy things too. Travelling and tramping here in nz and overseas. Will definetley look out your…[Read more]
-
Rosalind replied to the topic cognitive MS only – and weird symptoms in the forum Welcome – A Good Place to Start 1 year, 6 months ago
thanks Ed, Oh wow you are indeed the complete opposite – what a rough time you must have had/be having . I am so lucky. Seems like have had MS since 21 ( Optic Neuritis but treated within 24 hours with steroids, never told it could lead to MS) but despite lots of symptoms for 45 years they were not being taken seriously /diagnos…[Read more]
-
Rosalind replied to the topic Severe Trigeminal Nueralgia with MS lasts an hour in the forum Welcome – A Good Place to Start 1 year, 6 months ago
Hi there Jess and John. .OUCH ……. you describe excruciating TN pain. It sounds impossible to bear. I used to get TN pain lasting several hours but luckily not at the horrible levels you describe.. Although I did say to doc if I had a gun I would have shot myself. It was simply to explain the degree of pain, but I found out la…[Read more]
-
Rosalind started the topic cognitive MS only – and weird symptoms in the forum Welcome – A Good Place to Start 1 year, 6 months ago
Hi there – thanks, you guys are amazing. i have learnt so much.
1. Is there anyone else that has cognitive only MS, and no motor involvement (despite )decades of it ? Would love to find someone facing the same experiences. …
2. I get what I call brain sieze/freeze , and if strong it is followed by vertigo where the world tilts at an a…[Read more]
-
Rosalind posted an update 1 year, 7 months ago
Just read your article on effects of hormone changes at menopause on the brain , esepcially in relatioin to MS. Hooray .
20 years ago when i was undiagnsed and every neurological problem I had was not taken seriously by docotrs I realised what a boost HRT gave to my brain , and everytime I had to wean off them I would deterirate. Fortunately my…[Read more] -
Rosalind became a registered member 1 year, 7 months ago
-
Hi Rosalind,Apologies for the belated welcome. Co-moderator John Connor is out of action with an MS problem and, now that I’ve had my two COVID vaccine shots I’ve been getting ready to make a trip.
I’m glad you’re finally on track with a diagnosis after all those years and hope you’re on your way to better days.
We’re also glad you…
-
