• I love your attitude, no wonder you have  accomplished so much and seen so much. I  retired at 59 becasue I realised I was no longer  able to analyse, think ,  plan, decide at my usual level. Had no idea what was wrong but  its given me so much time to enjoy things too. Travelling and tramping here in nz and overseas. Will definetley look out your…[Read more]

  • thanks Ed,  Oh wow you are indeed the complete opposite – what a rough time you must have had/be having . I am so lucky. Seems like have had MS since 21  ( Optic Neuritis but treated within 24 hours with steroids, never told it could lead to MS)   but despite lots of symptoms   for 45 years  they were not  being taken  seriously /diagnos…[Read more]

  • Hi there Jess and John.  .OUCH ……. you describe excruciating  TN pain.  It sounds impossible to bear.   I used to get TN  pain  lasting several hours but luckily  not at the horrible levels you describe.. Although I did say to doc if I had a gun I would  have shot  myself. It was  simply to explain  the degree of pain, but  I found out la…[Read more]

  • Hi there –  thanks,  you guys are amazing. i have learnt so much.

    1. Is there anyone else that has cognitive only MS,  and no motor involvement (despite )decades of it ?  Would love to find someone facing the same experiences. …

    2. I get  what I call brain sieze/freeze ,  and if  strong it is followed by vertigo where the world tilts  at an a…[Read more]

  • Rosalind posted an update 1 year, 7 months ago

    Just read your article on effects of hormone changes at menopause on the brain , esepcially in relatioin to MS. Hooray .
    20 years ago when i was undiagnsed and every neurological problem I had was not taken seriously by docotrs I realised what a boost HRT gave to my brain , and everytime I had to wean off them I would deterirate. Fortunately my…[Read more]

  • Rosalind became a registered member 1 year, 7 months ago

    • Hi Rosalind,

      Apologies for the belated welcome. Co-moderator John Connor is out of action with an MS problem and, now that I’ve had my two COVID vaccine shots I’ve been getting ready to make a trip.

      I’m glad you’re finally on track with a diagnosis after all those years and hope you’re on your way to better days.

      We’re also glad you…

      [Read more]

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