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  • Steve Slobodzian posted a new activity comment 1 month, 3 weeks ago

    I was reading about how proud Canada is in treating immigrants with MS. And with the health care system they are treated for free. How is it then that citizens of Canada, over the age of 55, and have PPMS are denied Ocrevus ? This drug very well over the long run could save Canada money. If…

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  • Steve Slobodzian posted a new activity comment 1 month, 4 weeks ago

    I found out the hard way about Ocrevus and immune system. A couple of years ago I contracted an infection that landed me in the hospital for 2 days hooked to IV of anti-biotics. It killed the infection and they never identified what is was. Since then I self imposed indoors for two weeks after infusion and have not had a problem since. I…

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  • I was just reading the new, supposedly improved guidelines, Canada has imposed on PPMS patients. In particular it seems with their ongoing reluctance to administer Ocrevus, now to people over the age of 55. Roche originally were going to not recommend Ocrevus for the over 55 patients, but changed their mind. I am currently 67 and have been on…[Read more]

    • I’m in the UK and was on Ocrevus but pulled from it in December because it was decimating my immune system https://multiplesclerosisnewstoday.com/columns/2019/12/11/stop-in-the-name-of-leukocytes/. Obviously before Covid! Surely if it increases the risk of contracting COVID-19 this needs to be balanced against how helpful it is to you. The…

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    • I found out the hard way about Ocrevus and immune system. A couple of years ago I contracted an infection that landed me in the hospital for 2 days hooked to IV of anti-biotics. It killed the infection and they never identified what is was. Since then I self imposed indoors for two weeks after infusion and have not had a problem since. I…

      [Read more]

    • Hi Steve,

      Thanks for your comments. I’m concerned about guidelines that place an age ceiling on a treatment. I’ve been treated with Lemtrada. It’s helped slow progression and improve some symptoms, a bit. I began those treatments in Dec., 2016 when I was 69!

      BTW, the Lemtrada protocol requires that, before and after each series of…

      [Read more]

    • I was reading about how proud Canada is in treating immigrants with MS. And with the health care system they are treated for free. How is it then that citizens of Canada, over the age of 55, and have PPMS are denied Ocrevus ? This drug very well over the long run could save Canada money. If…

      [Read more]

  • Steve Slobodzian's profile was updated 2 years, 4 months ago

  • Steve Slobodzian became a registered member 2 years, 4 months ago

    • HI Steve,

      Welcome to the MS Forums. I hope you’ll chime in and add your thoughts to some of our discussions.

      Ed

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