• Carolyn posted a new activity comment 1 month, 2 weeks ago

    Thanks, Ed!
    See below. I wanted to read both replies before I put my thoughts together!
    • Carolyn posted a new activity comment 1 month, 2 weeks ago

      Thanks, John, for your reply. I’ve never been able to fall asleep in one of these monstrosities. The sedation they’re offering me is 10 mg Valium by mouth. It sounds like it would be enough to put me to sleep! Ten mg for sleep the night before, Then 10 mg one hr. before the MRI, and if I need it through the rest of the test, not to go over…

      [Read more]

    • Carolyn posted an update 1 month, 2 weeks ago

      I started Ocrevus on Jan 16th and 30th. I now have to have MRI’s 3 months after the infusions.
      Yes, I said 3 MRI with and without the gadolinium contrast. If it’s 20 mins for without and then 20 mins with the contrast, times the 3 MRI’s,…that’s 2 hours in the MRI tube! I don’t think I can do that at all, even with sedation. I would be…[Read more]

      • Carolyn,

        My personal experience is that a brain MRI without contrast usually takes about 20 minutes but the one that follows, with contrast, only takes about 5. As for the contrast itself, here’s info from the draft of a book that I’m writing:

        “In patients with normal kidney function, ninety percent of the gadolinium is passed out in the…

        [Read more]

      • Hi Carolyn

        Thanks for putting this up.

        I’m on Ocrevus myself – have had a couple MRI’S in the last few months!
        I know there is controversy about gadolinium – though I’ve never been bothered enough to investigate. I reckon the DMT’s are so damaging that the contrast is a sort of light relief!

        It seems sensible if you are worried to do it…

        [Read more]

        • Thanks, John, for your reply. I’ve never been able to fall asleep in one of these monstrosities. The sedation they’re offering me is 10 mg Valium by mouth. It sounds like it would be enough to put me to sleep! Ten mg for sleep the night before, Then 10 mg one hr. before the MRI, and if I need it through the rest of the test, not to go over…

          [Read more]

    • Carolyn posted a new activity comment 1 month, 3 weeks ago

      Hi John! Thanks for swift, cheerful welcome. I’m looking forward to learning and interacting with this group. Carolyn
      Same to you, Ed.
      • Carolyn became a registered member 1 month, 3 weeks ago

        • Hi Carolyn,
          Hi Helen,
          Welcome – loads of info, research & experiences on here.
          You can also start topics – my fellow
          moderator Ed explains ‘Posting Items’ at the top of each Forum.
          Cheers John
          • Hi Carolyn,

            Welcome to the MS forums. I hope you’ll learn some things, as you’ve written. But, as an RN with MS we can also learn from you. Please take a look at some of our topic discussions and share your comments and experiences with the rest of us.

            Ed

            • Hi John! Thanks for swift, cheerful welcome. I’m looking forward to learning and interacting with this group. Carolyn
              Same to you, Ed.
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