Biography

Name

Darlene Wolfire

Nickname

darlene-wolfire

Year of Birth

1992

Relationship

Family

Short Bio

My partner suffers with Ms symptoms, I believe, and is struggling to get diagnosed for anything currently. Having researched his symptoms in length, I have found out that he may be suffering with MS.

He is fatigued most of the time and used to be a lot more physically active, I’ve noticed that sometimes he’s started dragging his feet, he also has severe tingling, burning, itching sensations, as if electric shock is travelling or like ants crawling on his skin, sometimes he has cramping in certain joints and part of the body and/or aching too.

Sometimes he forgets simple words mid sentence and tells me how much he is struggling and that something is really wrong with his thinking process.

It’s been progressively getting worse in the last year and the GP at our clinic here in Leeds, UK have not been taking him seriously at all. He was eventually refered to a neurology surgeon, but the appointment which was 2 days ago didn’t seem to have gone any good way because the doctor did not listen to his symptoms and said that my partner’s bloods didn’t seem to indicate any issues at all and said he’d just have to take amitriptyline for the rest of his life and could fall under the 20% of neurology patients with mysterious unexplained illness. The doctor mentioned that he’d wait to see the MRI scan, which is going to be next week(the GP requested that after several appointments finally) and also the Neurology doctor said that potentially they could do a spinal tap but at this moment in time there’s no reason for them to think this is needed.

My partner is getting really desperate and tired of this whole mystery illness he is having and the way doctors and practitioners are just not interested in helping people with atypical symptoms.

I’d like to learn more about MS, hence why I am on here searching for information, answers, stories, help and mostly – hope.

How long have you or the person that you are caring for had MS?

Less than a year

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