Forum Replies Created

  • Darius Harris

    Member
    April 20, 2018 at 9:55 pm in reply to: Lightheadedness and Dizziness in MS

    That water thing I can vouch for, you need that … But other than that I would label it success. Either that or the Q10 – One of em pushed me over the hump. Nice to be out of dizzy pain. lol

     

  • Darius Harris

    Member
    April 20, 2018 at 12:05 pm in reply to: Lightheadedness and Dizziness in MS

    the thing with Biotin is it has to be taken in huge amounts to see any improvement, if any improvement is in the cards for a particular individual. I took 20K yesterday and today.. I will be adjusting it. My rationale is that if I flood my system with it (shock so to speak) that win I wean down my system will have a new presumed capacity or hunger for it. A very shaky theory, but hell I wasn’t doing anything anyway. lol Seems weird but I went to the doctor sans cane, (without) I listed a bit but as I am fond of saying. “Walking funny is far better than rolling perfectly.” (I missed the wheelchair by millimeters, figuratively)

    You can read about it here….   Obscenely high dosage of Biotin may help Multiple sclerosis sufferers.

    I have no idea of the linking etiquette here, so please give me warning before banishment moderator.

  • Darius Harris

    Member
    April 19, 2018 at 5:29 pm in reply to: Lightheadedness and Dizziness in MS
    • Yes. I catch what i must call vertigo. Its dow 80% or do since the Ocrevus initial infusion but any is horrible. I am trying Biotin these last 24 hours. I also am tryin Q10 and vitamins D3 and a B multi. As far as the dizzy balance walking…. Apple cider vinegar is the only thing the works half the time. Pot may help, seems like it did for the pain that i cant prove. Lol.
  • Darius Harris

    Member
    April 10, 2018 at 2:58 pm in reply to: I’m About to Start Ocrevus…

    I am slowly starting to appreciate Ocrevus.

    I did rebif for about 8 months, It was horrible. The only reason I tried it was because “Ocrevus” was 4 days from dropping when I was diagnosed. I actually was labeled a nut by my neurologist because I raised my fist in celebration upon hearing the news. I wasn’t happy about having it, I was happy to finally have a cause for my years of lost sleep and weird life/health occurrences.  But to answer you inquires, concerns… Its actually starting to work for the good now, 10 days after the 2nd infusion. They do 2 initially to titrate you (opposite of ween)

    I waited a year and did the rebif in the interim thinking after being the go-to for over 25 years they had to have adjusted and evolved it into a great option for some. It might be, but Im not one of them. Almost killed me, made me worse. I am now bouncing back.. thought I never would. I just knew I was headed for a wheelchair… or diapers because I barely made it to the bathroom all the time on that mess… It took me from ambulatory to very assisted. Made me wonder about going on and suicidal… lucky I have aspergers, that Got me through. I wasn’t so much suicidal as I was sick of tomorrows. Todays bad enough, i see no change coming and do not wish to repeat it.

    Anyway, ocrevus improved my core-strength instantly (after the infusion 3hrs) and I could finally hug my wife instead of her holding  me up. I was abit sad after the initial 3 days because I took a turn for the worst but bounced back normal as I had been in a year…. Then after the 2nd I figured I’d be back walking and was. No side effects, no sexual crap, nothing.

    I think this is the one. It got me out of my 9 month long “episode” and I highly recommend it. I have done enough autistic level study to feel superior, in thinking than my specialist. I as maybe you have done, studied maybe 8hrs a day for a year. With that said, I would like to feature your question on my 1 day old blog, DrivingMSdaily.com – Along with my response maybe. Thank you