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  • Debbie Taibi posted an update 7 months ago

    @mickik your message was great ! I agree with u wholehardily. My MS neur has
    new medicine testing groups that I signed up for , as of now not on any medicine. MS is like a disease no one talks about. No research info or new medicines being tested

    • Hi Debbie,

      Welcome to the MS forums. You can find a lot of info about research and new medicines here in the forums, or on the main pages of the Multiple Sclerosis News Today website. (Click on the “home” tab at the top of this page to get there). There’s also good info here: https://www.nationalmssociety.org/Research/Research-News-Progress

      Ed

        • I’ve never been offered to join a testing group. Never even told about that. Having said that, my first doctor was Dr. William Sheremata at the University of Miami. I had no idea how renowned he was until internet access. I had my first MRI in Ft. Ldl at the first MRI facility in the area. Quite different than now. My hub was able to stay in the room and hang on to my foot which was wonderful. 🙂

          It was a 70+ mile trip on I95 and I finally realized that I wasn’t really having any issues and I95 was going to kill us long before MS was going to be a factor. The doctor loved me – I had insurance that paid 100% and he had tests. When he wanted to do a test that would “only hurt a little” and “he would be right there with me” I quit. I wasn’t hurting at all and couldn’t figure out why I wanted to go through a procedure that “would only hurt a little”. LOL

          So, I guess I was part of my own little testing group. And, as I’ve said before, as it was RRMS, it was basically a non-issue in my life. And, silly me, thought it would stay that way.

          I wish you luck with the testing. Is it for meds or procedures, or what? Very interested in following you as you go through this. Good luck. Micki

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