• Does “when a woman your age presents with “unexplained pain and sensations” I usually advise “talking to someone”    count?         That was the ortho I went to first because I didn’t understand the pain.     I was kind and said “I don’t have a problem with that if necessary but do you think it could possibly be nerve related and maybe you could…[Read more]

  • Incident yesterday.    Getting ready to leave house but had to make a couple of phone calls.    Hair salon app’t – lady answered and I could not get my question out – could barely remember my stylists name (good friend for 10 years) and basically couldn’t talk.    I know she thought I was drunk.  But I could not get my brain to function.    Felt…[Read more]

    • I haven’t had that bad an experience but I can, very occasionally, feel weak enough to have to lie on the floor. Usually it’s the result of dehydration. However, if this is new to you I’d certainly ring up your neuro and mention it.


  • Micki posted an update 4 months, 1 week ago

    @john-connor-2 I’m not sure of your age but the pain attack is very strange for me. In a toe, my jaw, cheek and, yes, then I have issues in those areas. I would love to find a doc who really wants to STUDY MS and ask questions about each of us. A doc, I don’t care – a young research team – wouldn’t it be the best. I believe that MS…[Read more]

    • Hi Micki –

      Nice to see you posting again. You might be interested in the iConquerMS project. They gather data from MS people, via the web, and share it with researchers. Here’s the group’s website: https://iconquerms.org/

      Hope you’re doing ok.


  • Linda – I use an online pharmacy in Asheville, NC. It’s naturesvitaminsandherbs.com


    Good luck, Micki

  • Linda, where do you live – you may, very well, have some great shops near you.    Don’t be afraid to go in and talk.   I understand there is a stigma with marijuana and our age group.    This is totally different.  Promise.


  • Linda,   my reply said “waiting for moderation”.   I’m hoping it goes through.    I love that you said that you are “old” and tired of all this.     Me too my friend.     Let me know if you got my email.

    And, I’ve decided I love my gray hair – doors get held for me, folks let me go first in line, I get help with my luggage on a plane, I get disco…[Read more]

  • I would not buy on the internet.    I would go to a CBD pharmacy and get professional advice.    Its all legal –

  • Hi Stef, I started using CBD oil in October.    I’ve noticed that the numbness and tingle that I felt about half way up my calves have abated.     Some days it does come back but on an average I feel better.    I’m also sleeping better and do not have those “knee jerk” nerve reflexes.

    And, I have bone on bone issues with my knee and that pain h…[Read more]

  • The past few weeks I’ve been uncomfortably warm at night and even getting a “southern blush”.     Then suddenly I’m getting full blown night sweats.    I’m 74 and left that stuff behind a long time ago.

    Last night I woke up drenched from head to toe.   Dogs were moving away, I was throwing covers back and my husband is saying not nice words.…[Read more]

    • I can’t help with an answer to that one, Micki, but I’ve seen this problem regularly mentioned on the various MS Facebook groups that I watch.

      Can anyone else help Micki sweat this out? (Sorry, I couldn’t resist).


  • Micki started the topic Heat Wave: May 2019 in the forum Living With MS 8 months ago

    I’m sure many of you are NOT enjoying this heat.  I live in Asheville, NC and it is really bad.    Just a little curious.    I went to the grocery store yesterday – spent a few minutes in a hot car and in the parking lot.   Total of, maybe 15 minutes?    Exhausted and going out for dinner so took an extra Ritalin.   Then no sleep last night.   …[Read more]

    • The heat used to effect me badly. I love summer, and the swimming pool, but if I was out in the heat too long my legs would turn to jelly. But as I grew older the heat effected me less and the cold effected me more, particularly my bladder. So, I’ll take the heat over the cold anytime.


  • Ed, have you tried Theraworx.     It does seem to help.    Micki

  • Last night or early this morning – who knows – it was dark.   I got up to take one of those bathroom breaks we all know and love.   Got back in bed and just as I was nodding off – yep – muscle spasm.   My left arm and down my side.   My arm was lying peacefully on my pillow and took off with a life of its own.   Lifted off the pillow, charged t…[Read more]

    • You’re right, Micki. Sometimes all you can do is laugh.

      I get cramps in my foot and calf a lot in bed, usually the left side, but I’m not attacking any of my bed partners – wife, dog, cat. I’m sure I’d be relegated to the guest bedroom if any of them were assaulted.

      Anyone else have a laughable story to tell?


  • Micki posted an update 9 months, 2 weeks ago

    You know, after giving some thought, I realize, a lot is on me. The MS was benign for so long that it was a non-issue. Now, its on the uptick and up to me to fill in my other docs. Working on it.
    • Micki posted an update 9 months, 2 weeks ago

      I take Ritalin every day – but every once in awhile would like a “booster”. :0
      • Micki posted an update 9 months, 2 weeks ago

        I know – I just am getting so tired of docs. I had my family doc put me on statins. They made me feel awful. Tired, etc. I cannot get him to consider my MS when giving meds and it doesn’t seem to be part of the discussion. I have made up my mind that from now on my MS is going to be considered with all my discussions with any doc. No…

        [Read more]

        • Micki,

          Unfortunately, ignoring our MS seems to be the way it goes with a lot of docs. I see reports of this all the time on various social media groups. I’m very fortunate to have a PCP who totally understands, and cares, about my MS and a neuro who is an MS specialist and knows her stuff.


      • Micki posted an update 9 months, 2 weeks ago

        I have a question. I’m going to spend a week with my sister next month. Visiting Austin and being a tourist. Does anyone have anything they take to give extra energy for the short term?

        • Hi Micki,

          I’ve used Provigil (modafinil) to counter my MS fatigue for years. I usually take 100mg in the morning. Occasionally, I’ll take a second dose in the afternoon if I’m tired but I have things to do late in the day. There are other meds as well. I’d suggest speaking with your neuro about it


      • Ed, so glad you are getting some relief using CBD.      Until you said something I had not paid attention to the fact that I’ve not had knee jerks in the middle of the night for quite awhile.    Hmmm

        I do like sleeping.

      • I have been taking biotin for about 6 months.   Not sure I’ve noticed a difference but, this question got me to thinking and I did some research.   I’m wondering if I’m taking enough.   Question I will be asking my trusted doctor’s nurse today.

        Having said that – one of the things its suppose to assist is energy.   I don’t know about anyone…[Read more]

        • Micki,

          Over the years I’ve found that I can handle heat better than cold. Cold and damp weather really makes my legs stiff, not to mention the job that it does on my psyche. That’s why I’m so glad we’re able to spend three months in Florida in the winter.

          On CBD…I’ve just started trying a topical CBD spray. I’ve just used it for two nights but…[Read more]

      • Micki posted an update 11 months, 2 weeks ago

        That was one of my very first symptoms and led to the diagnosis. Cold felt very hot – burning – all on the surface. Interesting. Maybe someone else. Thanks for your response. Hoping you have a good day, Ed.
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