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  • Micki replied to the topic Cooling Vests in the forum Durable Medical Equipment 1 month ago

    Thanks, Ed – I saw that MS Society did that.   And , I am going to check with Medicare.   Actually, not out of my price range but, if I’m going to invest I want it to be comfortable to wear.   Don’t want to invest that kind of $$ and then have sit in a closet somewhere.

     

    I hope you are doing all you can to be safe.   Micki

  • My doctor suggested I get a cooling vest to get through this summer heat.     The ones that look comfortable and easy to wear are pricey.    Does anyone know if Medicare covers?

     

    Thank you

  • Good for you – sometimes benign watchfulness is the best.    I’m glad you are at peace.

  • Just read your post and listening to update on the condition of your PM.

    My hub and I live in NC in the US.   At the end of Feb he broke his hip – doing well now but, obviously, we had a head start on the “staying home”.   I’m lucky that we are old enough not to have to worry about work but, is hitting all in the US very hard.

    I have been dia…[Read more]

  • Micki posted a new activity comment 6 months, 2 weeks ago

    Lorraine – I am also in Asheville. She is in Greer. Going on the 19th. We should have lunch. I’ll PM you with more info.
    • Micki posted a new activity comment 7 months ago

      True.
      • Micki started the topic Biotin in the forum Alternative Treatments 7 months ago

        Is anyone taking biotin?  My neurologist told me to take 100 mg 3 x day.    When I do the conversion to micrograms which is the way it comes that’s 100000 mcgs.    Lots of pills.

        How much are you taking and where are you purchasing your pills?    Any help – so appreciated.

         

         

      • Micki posted an update 7 months ago

        I just watched the film “Awake” suggested on the home page I think. Great short on MS and insomnia. I don’t feel like the only one in the world now. Maybe we should start a forum call ‘awake with MS’ so we’d have folks to talk to in the middle of the night. grin. Have a good day.

      • Tammy and Profile picture of MickiMicki are now friends 7 months ago

      • Debbie Taibi and Profile picture of MickiMicki are now friends 7 months ago

      • Micki posted a new activity comment 7 months ago

        I’ve never been offered to join a testing group. Never even told about that. Having said that, my first doctor was Dr. William Sheremata at the University of Miami. I had no idea how renowned he was until internet access. I had my first MRI in Ft. Ldl at the first MRI facility in the area. Quite different than now. My hub was…

        [Read more]

      • Micki posted a new activity comment 7 months ago

        Lorraine, you are where I am. I was diagnosed in 83 at 39. With RRMS you basically live your life and, if like me, ignored the benign. Didn’t even realize I was having MS issues until I began doing research and looking back understood what was going on. I worked, raised my kids, retired, traveled and all of a sudden things changed.…

        [Read more]

        • Thanks for giving my sweet 2 1/2 granddaughter a compliment. Micki, where in S.C is your doctor? My M.S doctor is just a regular neurologist but has a lot of M.S. patients. He is in Asheville NC.
            • Lorraine – I am also in Asheville. She is in Greer. Going on the 19th. We should have lunch. I’ll PM you with more info.
          • Micki posted a new activity comment 7 months ago

            Man, Ed, you are young. My grandkids range from 23 to 38. The ones in their 30s are son’s of my hub’s son. We now have greats 4 1/2. The half is due next month. Excited.
              • Lorraine, you are where I am. I was diagnosed in 83 at 39. With RRMS you basically live your life and, if like me, ignored the benign. Didn’t even realize I was having MS issues until I began doing research and looking back understood what was going on. I worked, raised my kids, retired, traveled and all of a sudden things changed.…

                [Read more]

                • Thanks for giving my sweet 2 1/2 granddaughter a compliment. Micki, where in S.C is your doctor? My M.S doctor is just a regular neurologist but has a lot of M.S. patients. He is in Asheville NC.
                    • Lorraine – I am also in Asheville. She is in Greer. Going on the 19th. We should have lunch. I’ll PM you with more info.
                  • Nope, Micki. I’m 71 years old. You must have been a child bride. 🙂
                  • Micki replied to the topic Insomnia in the forum Welcome 7 months, 1 week ago

                    What a great idea.   Had not thought about mixing with milk, cocoa or whatever.   Thank you, John, so much.   And, what’s keeping me awake is the decision to move, finding agent, getting this house ready to sell — well you get it.    Thanks,   Micki

                  • Micki started the topic Insomnia in the forum Welcome 7 months, 1 week ago

                    Adding insult to injury – tired all the time and now can’t sleep.   I’ve never really had issues with sleeping that lasted this long before.   I can usually read myself to sleep even though it might be late.      But, for the last week or so I’ve watched the clock all night.   Somewhere around 6:30 fall into a really nice sleep and at 7:14 the…[Read more]

                  • Does “when a woman your age presents with “unexplained pain and sensations” I usually advise “talking to someone”    count?         That was the ortho I went to first because I didn’t understand the pain.     I was kind and said “I don’t have a problem with that if necessary but do you think it could possibly be nerve related and maybe you could…[Read more]

                  • Incident yesterday.    Getting ready to leave house but had to make a couple of phone calls.    Hair salon app’t – lady answered and I could not get my question out – could barely remember my stylists name (good friend for 10 years) and basically couldn’t talk.    I know she thought I was drunk.  But I could not get my brain to function.    Felt…[Read more]

                    • I haven’t had that bad an experience but I can, very occasionally, feel weak enough to have to lie on the floor. Usually it’s the result of dehydration. However, if this is new to you I’d certainly ring up your neuro and mention it.

                      Ed

                  • Micki posted an update 1 year ago

                    @john-connor-2 I’m not sure of your age but the pain attack is very strange for me. In a toe, my jaw, cheek and, yes, then I have issues in those areas. I would love to find a doc who really wants to STUDY MS and ask questions about each of us. A doc, I don’t care – a young research team – wouldn’t it be the best. I believe that MS…[Read more]

                    • Hi Micki –

                      Nice to see you posting again. You might be interested in the iConquerMS project. They gather data from MS people, via the web, and share it with researchers. Here’s the group’s website: https://iconquerms.org/

                      Hope you’re doing ok.

                      Ed

                  • Linda – I use an online pharmacy in Asheville, NC. It’s naturesvitaminsandherbs.com

                     

                    Good luck, Micki

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