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Jacqueline replied to the topic Do you think MS is a rare disease? in the forum Living With MS 1 week, 3 days ago
Depends on how we view the figures…” there are approximately 7.673 billion people in the world. Of those around 2.8 million have been diagnosed with MS ( sounds a lot. ) Based on that data less than 1% of the population has MS ” ( doesn’t sound a lot )
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Jacqueline replied to the topic Does a Diet Help Your MS? in the forum Alternative Treatments 10 months, 1 week ago
I do attempt to eat gluten free ( breads – cereals )…not sure it makes much difference…
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Jacqueline posted a new activity comment 10 months, 1 week ago
Apologies Ed, to answer your question, yes so far i have handled things through our two plus years of our Pandemic situation…now a new word to get used to Monkeypox…just as well i stopped listening to our televised news channels for the past year plus…too depressing…
Jackie…
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Jacqueline posted a new activity comment 10 months, 1 week ago
Ed, thank you for thinking of me and wondering how i have been doing…Yes i did pop in for a short while…My PP-MS as expected has progressed, i had a ten week wait ( our NHS ) for Abdomen – Pelvis & Transvaginal Ultra Scans due to an ongoing lower stomach and swollen stomach issue which has been ongoing since before last Christmas…she…[Read more]
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Jacqueline replied to the topic MS Symptoms Often Apparent Years Before Diagnosis in the forum Living With MS 1 year, 9 months ago
Looking back, nothing out of the ordinary happened to me until i reached 61 & a half, things i could not explain, apart from ” something strange is happening to my walking “….then finally diagnosed age 64 with PP-MS…i am now 70..
Jackie..
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Jacqueline replied to the topic MS and Coronavirus RNA vaccines in the forum Coronavirus COVID-19 Information 1 year, 11 months ago
Going for my second corona virus vaccination this morning, the Oxford AstraZenica, same as my first…leaving in one hours time UK…
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Jacqueline started the topic I am NOT drunk… in the forum Living With MS 1 year, 11 months ago
<b>Why do people when we are out and about, when we get off our mobility scooters and attempt to walk inside a shop ( charity shop to donate unwanted items ) clinging onto any moving handrails with see to steady ourselves assume that we are drunk, you would ever believe the looks i get..nor no one ever comes to my help, not even the cashiers even…[Read more]
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Jacqueline replied to the topic Treat MS Symptoms or Find a Cure? in the forum MS Medications 2 years, 1 month ago
I am not sure we will ever find a cure for MS, nor prevent MS, until we-they find out what causes it in the first place…
Find out what causes MS in the first place…is it something we have done to our own body’s over the years, was it the shingles, the herpes zoster…until they know what causes something how on earth can they ever find a…[Read more]
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Jacqueline replied to the topic How I’m Staying on Top of MS’ Many ‘Gifts’ in the forum Living With MS 2 years, 1 month ago
John…
… oh yes, our ” gifts ” just keep on coming, dont they…what next is on my PP-MS list, and to think i had no issues, no MS signs, until age 61 & a half…
Jackie…
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Jacqueline replied to the topic What New Hell Is This? in the forum Living With MS 2 years, 1 month ago
John, only just seen your posting to me…I have suffered deep cutting folds in the ankles, not so showing now since rubbing Dermol 500 onto my damaged skin lower legs…No signs of wart like growth nor no signs of fluid leaking through the skin…
Something new to deal with is my tinnitus, oh the joys ” NOT ” of our MS…what next is waiting a…[Read more]
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Jacqueline replied to the topic In the UK MS Patients Have been Refused a Blue Badge [Disabled Placards] in the forum Living With MS 2 years, 2 months ago
<b>John… two separate posts but just the one of me…John, the mind boggles at these pen pushers who sit inside these offices and make these rules…</b>
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Jacqueline replied to the topic What New Hell Is This? in the forum Living With MS 2 years, 2 months ago
<b>Yes i to suffered with cellulitis infection just a couple of months ago at age 69, a couple of courses of antibiotics and penicillin eventually got rid of it, mind you, took some time to get rid of it…another added nightmare i had to deal with on top of my already PP-MS…</b>
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Jacqueline replied to the topic Treating MS with Hookworms? in the forum Alternative Treatments 2 years, 2 months ago
No thank you…mind you, maggots ( help clean wounds by feeding on dead tissue ) <b>leeches ( bloodsuckers, provide a lifesaving vacuum effect that helps doctors clear away bad blood and reattach severed appendages )</b> and cancer fighting scorpions are all what scientists are using, supposedly effective techniques…Hm, one day they might become…[Read more]
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Jacqueline replied to the topic In the UK MS Patients Have been Refused a Blue Badge [Disabled Placards] in the forum Living With MS 2 years, 2 months ago
In three years time i will have to go through the whole process again, photo, money, form filling etc, etc..
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Jacqueline replied to the topic In the UK MS Patients Have been Refused a Blue Badge [Disabled Placards] in the forum Living With MS 2 years, 2 months ago
<b>Not been refused but, although i made it aware i have Primary progressive MS which means as it read ( it is progressive, clear enough, will just get worse with progression ) I think the wording is clear to those who issue these Blue Badges ( UK ) so why do they run out in three years, do they honestly think a miracle will happen and hey presto,…[Read more]
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Jacqueline replied to the topic Biotin in the forum Alternative Treatments 2 years, 2 months ago
<b>John…healthy hair – skin and nails are the least of our problems but, good to know there is something out there on the market that will make us look good, if not make us feel better…yes do keep up your ” luxurious ” look…</b>
<b>Jackie</b>
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Jacqueline replied to the topic MS and Coronavirus RNA vaccines in the forum Coronavirus COVID-19 Information 2 years, 2 months ago
<b>Ed…i dont have an MS nurse but i did get a telephone booked call with my new Neurology Clinician but of all the things i had written down to talk to him about my deteriorating illness, the important questions were not on my mind nor did he mention anything concerning my question, guess he was not aware that i will be called up near the same…[Read more]
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Jacqueline replied to the topic MS and Coronavirus RNA vaccines in the forum Coronavirus COVID-19 Information 2 years, 2 months ago
Question, do we know the safety of a mixture of Gadolinium with either Oxford AstraZeneca – Pfizer BioNTech – Moderna, these are the three now being rolled out here in UK…When the time comes for my vaccination which should be around the same time i will be booked for my MRI scan, i will not know which of the three i will be having, we dont get…[Read more]
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Jacqueline replied to the topic MS and Coronavirus RNA vaccines in the forum Coronavirus COVID-19 Information 2 years, 2 months ago
I will be booked an MRI scan, told will take place in a couple of months time when our UK Pandemic Virus calms – slows down, they are currently at their highest at January 2021…My question now is if i am to have gadolinium injected into my arm March – april, what dangers might i face as and when i get called up possibly late March – April for…[Read more]
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Jacqueline replied to the topic Is taking a shower difficult for you? in the forum Living With MS 2 years, 3 months ago
Ed, thank you for my welcome back…I am not doing well, what with the stress i have had to deal with since the sudden loss of my partner – hubby at age 74, 19 months ago, plus my move 3 months ago has, is taking its toll…Oh and did i mention that i found him dead 4 years after, to the exact date 11th April i was diagnosed with PP-MS at age…[Read more]
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