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  • Jacqueline posted a new activity comment 6 months, 3 weeks ago

    Olivia… we can only live in hope for the sake of our future generations…

    Jackie..

    • Yes ” Invisible Disease ” Day, as this is exactly what our MS is to non MS’ers…they simply have no clue as to realy what is going on inside our body…what the insides of our body really feels like to live with on a daily basis..

    • Jacqueline posted a new activity comment 7 months ago

      Ed, of course i knew you was still around, you are the main man, ( moderator ) although good to know i now have a choice of across the pond or local London…yes our MS travels everywhere…

      Jackie…

      • Jacqueline posted a new activity comment 7 months ago

        John, thank you for your welcome although i am not new to our forum but i see that you are new ( a moderator ) since i last posted…so sending a welcome back to you…

        Jackie…Diagnosed with PP-MS 11th April 2015 at the ripe age of 64, same date i lost my partner suddenly at age 74…11th April 2019…

          • Hi Jackie,

            Let the OLD (in more ways than one) moderator welcome you back. I’m glad you found us again. BTW, John is in London so you won’t have to deal with this Yank anymore, unless you want to. 🙂

            Ed

            • Ed, of course i knew you was still around, you are the main man, ( moderator ) although good to know i now have a choice of across the pond or local London…yes our MS travels everywhere…

              Jackie…

          • My answer has now changed, my circumstances have changed since I lost my partner suddenly to a heart blockage…I now would thank God for hearing my prayer and answering to it in taking my PP-MS away from me…then i will concentrate on the rest of my life whatever that may be…hopefully i will have some form of actually wanting to be LIVING…[Read more]

          • Jacqueline changed their profile picture 7 months, 1 week ago

            • Hi Jacqueline,
              Welcome – loads of info, research & experiences on here.
              You can also start topics – my fellow
              moderator Ed Tobias explains ‘Posting Items’ at the top of each Forum.
              Cheers John
                • John, thank you for your welcome although i am not new to our forum but i see that you are new ( a moderator ) since i last posted…so sending a welcome back to you…

                  Jackie…Diagnosed with PP-MS 11th April 2015 at the ripe age of 64, same date i lost my partner suddenly at age 74…11th April 2019…

                    • Hi Jackie,

                      Let the OLD (in more ways than one) moderator welcome you back. I’m glad you found us again. BTW, John is in London so you won’t have to deal with this Yank anymore, unless you want to. 🙂

                      Ed

                      • Ed, of course i knew you was still around, you are the main man, ( moderator ) although good to know i now have a choice of across the pond or local London…yes our MS travels everywhere…

                        Jackie…

                • Debi, I hope so, as at this moment in time, that I lost my partner less than three weeks ago, I cant for the life of me see what the reason was-is…but yes,  have always believed in ” everything happens for a reason..” although I cant see the reason he was taken from me on that fateful day, as i know he would have never have left me…I am sure…[Read more]

                • Trust me, I have just lost my partner of 19 years, 17 days ago, ( he died at home unexpectedly in his armchair after coming home from taking our dog to the pet groomers, ) and so far I have lost 15 lbs of weight, ( 1 st -1 lb, and I have primary progressive MS. Trust me, lose someone close to you, your weight will automatically just fly…[Read more]

                • Quoting Ed

                  Jackie

                  ” My condolences, again. I’m glad that you’ve now shared this with the rest of the group so that others can offer you their support. We can’t be there to hold your hand but you know you’re in our hearts.”

                   

                  Thank you Ed, and everybody, can I please ask you all to continue praying for me and to give me the strength to see mys…[Read more]

                • Would you believe my partner of almost 20 years who has just passed away last Thursday 11 th April , it has only dawned on me this is the same date I was diagnosed with Primary Progressive Multiple Sclerosis, the sane day I got my diagnoses 4 years ago..

                   

                  Jackie.

                  • Jackie,

                    My condolences, again. I’m glad that you’ve now shared this with the rest of the group so that others can offer you their support. We can’t be there to hold your hand but you know you’re in our hearts.

                    Ed

                • Yes my right hand, although to look at it, looks identical to my left hand, so only I know how it feels. I used to describe it a shrivelled up dried leaf, it feels as if the coating has come off and has a daily constant mild pins and needles which at times makes it harder to use especially fiddly things like putting the butterfly backs into the…[Read more]

                • Jacqueline changed their profile picture 1 year, 5 months ago

                • Quoting Ed: ” Good work Jackie. I have to ask, however, might it have been possible for your other half to have dropped you outside the hairdresser and then gone to park the car? (And will be seeing a new profile picture of you with your new “doo”)?

                  Replying to Ed:

                  Ed, well yes, but after the last time he done that it was after the 9,30am…[Read more]

                • I quite agree, and would you believe it? the first thing I asked  for when he greeted me at the front door ( the place was empty ) was if I could pay a visit to the loo, as I was absolutely dying to go. He ushered me out to the tiny and rather cramped backroom.

                  Debi, I guess you are the same as me when it comes to going anywhere?  we cant, nor w…[Read more]

                • I would like to think I take after my late father, he was from what we call ” a rough and ready ” family. I do feel that I am becoming more like him, especially as now I use all these positive Idioms that he once used, it is only lately I am realising what a positive person he was. I wish he was alive now to keep me focused on the good’s of life…[Read more]

                • I achieved the walk to the hairdressers, it was a hard slog as the top-join of my right leg was still actively doing its electricity shocks, whilst walking from A to B over cobbled stone ground, the area is now pedestrianised and where my other half decided this morning to park the car was not nearer-easier but further-harder, so I was not pleased…[Read more]

                  • Good work Jackie. I have to ask, however, might it have been possible for your other half to have dropped you outside the hairdresser and then gone to park the car? (And will be seeing a new profile picture of you with your new “doo”)?

                    Ed

                • Here in UK and at various MS Therapy Centres of which I was a member of the Bedford-Northants just before I moved to our new address, they ran Mindfulness courses but one had to put their name down and they only ran them when they had enough people interested which could take several months, of course I was the first one to place my name on the…[Read more]

                • Like many MS’ers, I suffer terrible almost daily ” stomach bloat, ” and I know much is down to the foods and liquids I eat and drink. My lower stomach bloat does affect the rest of my MS body.

                • Debi, yes, I was in a tiny box room of an isolation ward, mid summer, no window to open, just a tiny jar to open from the bottom, I was trying to get what air I could, even the door was closed and I wasn’t allowed to venture out into the corridor. I just remember laying dead still on top of the bed, with the box rooms walls closing in on me,…[Read more]

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