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  • I am not sure we will ever find a cure for MS, nor prevent MS, until we-they find out what causes it in the first place…

    Find out what causes MS in the first place…is it something we have done to our own body’s over the years, was it the shingles, the herpes zoster…until they know what causes something how on earth can they ever find a…[Read more]

  • John…

    … oh yes, our ” gifts ” just keep on coming, dont they…what next is on my PP-MS list, and to think i had no issues, no MS signs, until age 61 & a half…



  • John, only just seen your posting to me…I have suffered deep cutting folds in the ankles, not so showing now since rubbing Dermol 500  onto my  damaged skin lower legs…No signs of wart like growth nor no signs of fluid leaking through the skin…

    Something new to deal with is my tinnitus, oh the joys ” NOT ” of our MS…what next is waiting a…[Read more]

  • <b>John… two separate posts but just the one of me…John, the mind boggles at these pen pushers who sit inside these offices and make these rules…</b>

  • Jacqueline replied to the topic What New Hell Is This? in the forum Living With MS 1 month ago

    <b>Yes i to suffered with cellulitis infection just a couple of months ago at age 69, a couple of courses of antibiotics and penicillin eventually got rid of it, mind you, took some time to get rid of it…another added nightmare i had to deal with on top of my already PP-MS…</b>

  • No thank you…mind you, maggots ( help clean wounds by feeding on dead tissue ) <b>leeches ( bloodsuckers, provide a lifesaving vacuum effect that helps doctors clear away bad blood and reattach severed appendages )</b> and cancer fighting scorpions are all what scientists are using, supposedly effective techniques…Hm, one day they might become…[Read more]

  • In three years time i will have to go through the whole process again, photo, money, form filling etc, etc..

  • <b>Not been refused but, although i made it aware i have Primary progressive MS which means as it read ( it is progressive, clear enough, will just get worse with progression ) I think the wording is clear to those who issue these Blue Badges ( UK ) so why do they run out in three years, do they honestly think a miracle will happen and hey presto,…[Read more]

  • Jacqueline replied to the topic Biotin in the forum Alternative Treatments 1 month, 1 week ago

    <b>John…healthy hair – skin and nails are the least of our problems but, good to know there is something out there on the market that will make us look good, if not make us feel better…yes do keep up your ” luxurious ” look…</b>


  • <b>Ed…i dont have an MS nurse but i did get a telephone booked call with my new Neurology Clinician but of all the things i had written down to talk to him about my deteriorating illness, the important questions were not on my mind nor did he mention anything concerning my question, guess he was not aware that i will be called up near the same…[Read more]

  • Question, do we know the safety of a mixture of Gadolinium with either Oxford AstraZeneca – Pfizer BioNTech – Moderna, these are the three now being rolled out here in UK…When the time comes for my vaccination which should be around the same time i will be booked for my MRI scan, i will not know which of the three i will be having, we dont get…[Read more]

  • I will be booked an MRI scan, told will take place in a couple of months time when our UK Pandemic Virus calms – slows down, they are currently at their highest at January 2021…My question now is if i am to have gadolinium injected into my arm March – april, what dangers might i face as and when i get called up possibly late March – April for…[Read more]

  • Ed, thank you for my welcome back…I am not doing well, what with the stress i have had to deal with since the sudden loss of my partner – hubby at age 74, 19 months ago, plus my move 3 months ago has, is taking its toll…Oh and did i mention that i found him dead 4 years after, to the exact date 11th April i was diagnosed with PP-MS at age…[Read more]

  • Ed, thank you my welcome back…I am not too good, stress since the sudden loss of my partner-hubby age 74, 19 months ago, plus my move 3 months ago, has – is taking its toll…


    • Jackie,

      I’m very sorry to hear that you’re doing poorly. I do remember when you shared with us the news of the death of your partner. It’s hard to believe that was a year and a half ago. Please know that you have at least one – and probably many more – welcoming ears here.

      Let’s hope that the coming year will be much better for all of us.


  • I make sure i shower-shampoo my hair keeping my head as straight as i can without bending the neck and head forwards, as if i was to bend my neck, my head forwards, i can guarantee Lhermitte’s ( sign – phenomenon ) will have me down on the floor, like it did once when i was showing the shampoo off and i briefly closed my eyes as i was doing it…

  • Jacqueline posted a new activity comment 1 year ago

    Olivia… we can only live in hope for the sake of our future generations…


    • Yes ” Invisible Disease ” Day, as this is exactly what our MS is to non MS’ers…they simply have no clue as to realy what is going on inside our body…what the insides of our body really feels like to live with on a daily basis..

    • Jacqueline posted a new activity comment 1 year ago

      Ed, of course i knew you was still around, you are the main man, ( moderator ) although good to know i now have a choice of across the pond or local London…yes our MS travels everywhere…


      • Jacqueline posted a new activity comment 1 year ago

        John, thank you for your welcome although i am not new to our forum but i see that you are new ( a moderator ) since i last posted…so sending a welcome back to you…

        Jackie…Diagnosed with PP-MS 11th April 2015 at the ripe age of 64, same date i lost my partner suddenly at age 74…11th April 2019…

          • Hi Jackie,

            Let the OLD (in more ways than one) moderator welcome you back. I’m glad you found us again. BTW, John is in London so you won’t have to deal with this Yank anymore, unless you want to. 🙂


            • Ed, of course i knew you was still around, you are the main man, ( moderator ) although good to know i now have a choice of across the pond or local London…yes our MS travels everywhere…


          • My answer has now changed, my circumstances have changed since I lost my partner suddenly to a heart blockage…I now would thank God for hearing my prayer and answering to it in taking my PP-MS away from me…then i will concentrate on the rest of my life whatever that may be…hopefully i will have some form of actually wanting to be LIVING…[Read more]

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