Jacqueline

Just how horrible it is, all the various things that go on ( invisibly to the outsiders ) inside our body, the invisible things that the outside world will never see, will never feel, will never experience, the sensations, the pains, the discomforts. I would want honesty from our medical professions, our local GPS to tell us the truth of what to…[Read more]

Now I have publicly posted I have MS, where I shall be sitting, the day I shall be there, will be my 68th birthday, now that’s all the information I shall be giving, whoops. Everything else I shall keep schtum – shtum, ( not sure of correct spelling )  about myself.

This is world renowned Sally Morgans 10th Anniversary tour, and it falls on my actual 68th birthday, the day I shall be going.

That’s something to look forwards to I guess, I have often wondered why my life has turned out the way it has. Is it our Gods choice or is it the choice of two paths, and which path we choose to take. Although MS was not a choice, nor are we blaming it on our God. Yes be interesting seeing how it all comes together, the why’s.

And I bet money has come in from all corners of our world. My today emojis are Hope and kindness

Everything happens for a reason is my belief. It was always that before MS and it still is now, nothing has changed.

Positive thinking or wishful thinking? now if only.

Debi yes, Bio-tiful Kefir Riazhenka, I often have it over my muesli and granola with fresh raspberries and blueberries, my usual morning breakfasts. Have you tried Rude Health’s coconut – almond – hazelnut milks? they have less fats ( 1.2g ) than some other brands of coconut milks. they are also grain, gluten  and dairy free, and with no added…[Read more]

Ed, re: exercise,  scootering over to the gym. Is your scooter being given a workout too?  are you taking it to the gym, or is it taking you? our mobility scooters also need to keep in shape if they have to look after us, ha ha, they also have to bare our weight.

Ed, I think the word I am looking for is ” misconceptions.”

Quoting: ” As nouns the difference between misconception and myth is that misconception is a mistaken belief, a wrong idea while myth is a traditional story which embodies a belief regarding some fact.”

Oh forgot to add, yes agree, whatever ailments anyone is suffering with exercise will always play an important part, we have to keep every part of our body flowing of some form of movements, as and when possible of course. We have to look after our bone and muscle structure.

Debi, I know there are several vegetables and fruits that contain there own water, ( water rich foods ) fruits and lettuces so it may be that you are overdosing on too much water without realising it. I guess this is something we dont think about when upping our water intake on a daily basis.

WATER CONTENT

Watermelon 92%           Str…[Read more]

Debi, there have been many days I have said to my other half that I will give it a try going one day with very little food, and fluids, teas, ( apart from water ) just to test if my stomach feels any different, or it makes any difference to my MS body movements but as soon as I say this it goes completely out of my mind, so have yet to follow this…[Read more]

Ed thank you for message but in my opinion he has still omitted my number 1)  ” MS only happens to young people, ” as we now know, that is untrue, we-I am proof of that, there are many who get Primary Progressive in our later years. I am surprised that hasn’t been included in his myths.

Before my diagnoses one of my previous GPs almost laughed…[Read more]

I can still laugh, find humour in things. I still have my strong opinions, and not afraid to make my points known. My brain box is still functioning, I am still on the ball. I often try to carry on as If I dont have MS, well in my mind I do. As for work in the home, I can still take my turn feeding the dog. I can still do washing up, by hand, not…[Read more]

Jilly, yes that is ” awesome ” so many kind hearted’s in this world, and of their country’s generosity, that rally round when in times of need. It is hard not to be touched by this. Jilly I hope you dont mind but I have posted this on my American Seniors forum, I can send you the link to it. Thank you so much for telling us this.

My today’s…[Read more]

My emoji if I had one would be a face of disbelief.

As I cant view the link, these are just my guesses.

Myth 1) MS only happens to young people – wrong.

To be honest I was very naive and thought when I got it that it was an old persons Illness- disease. That was until I found out Primary Progressive is only in the 10% to 15% of people over 50 who get it.

Myth 2) MS shortens our lifespan – well…[Read more]

Debi no but, I do know that my stomach becomes horrible as soon as I have drunk my first cup of tea of the morning. I can only assume that both our bladders and our bowels dont work the same way they did before our MS.