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  • Lorraine Greco posted an update 8 months, 2 weeks ago

    I’m new to this site, I have had M.S. for 23 years, since I was 45. I had relaxing remiting, but it has turned into secondary progressive. I have moderate cognitive problems with my m.s. How do I get involved in this group?

    • Hi Lorraine,

      Welcome to the MS forums. We hope you’ll find useful information here and will also share your thoughts and questions.

      Click on the “forums” tab at the top of this page to get to our various topics. There are instructions to help guide you around at the top of each forums page. Feel free to ask me, or co-moderator John Connor, if you need any help.

      BTW, that’s a very cute young lady in your profile pic. I’m assuming it’s a granddaughter. I have a 5 1/2 year old granddaughter and a 3 1/2 year old grandson.

      Ed

        • Man, Ed, you are young. My grandkids range from 23 to 38. The ones in their 30s are son’s of my hub’s son. We now have greats 4 1/2. The half is due next month. Excited.
            • Lorraine, you are where I am. I was diagnosed in 83 at 39. With RRMS you basically live your life and, if like me, ignored the benign. Didn’t even realize I was having MS issues until I began doing research and looking back understood what was going on. I worked, raised my kids, retired, traveled and all of a sudden things changed. Have been told FINALLY that I’m now in SPMS but never had anyone explain what that means. Found out more on this forum and on the internet than I’ve ever learned from docs. I guess when they give us the diagnosis they think something clicks in our brain and we have complete comprehension.

              I have found a neurologist totally dedicated to MS in SC and I will have my first visit with her next month. I’ve been told to expect my first visit to last 2 to 3 hours. Not even when I was going to Wake Forest did that happen.

              I feel, that with the RRMS and the life that goes with that part of MS I got behind the curve in MS knowledge. You’re probably there at this time. Keep digging, asking questions, take written questions in and take notes. If you don’t get answers or if you feel you’re not being taken seriously, change docs. Even if, like me, you have to drive a couple of hours. Good luck and, I agree with Ed, Cute little girl.

                • Thanks for giving my sweet 2 1/2 granddaughter a compliment. Micki, where in S.C is your doctor? My M.S doctor is just a regular neurologist but has a lot of M.S. patients. He is in Asheville NC.
                    • Lorraine – I am also in Asheville. She is in Greer. Going on the 19th. We should have lunch. I’ll PM you with more info.
                  • Nope, Micki. I’m 71 years old. You must have been a child bride. 🙂
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