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Jilly replied to the topic Does it matter what you call your MS? in the forum Living With MS 1 month, 2 weeks ago
Rock it, good one Carmen. Nice to see you on the boards.
Jilly PPMS
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Carmen W replied to the topic Does it matter what you call your MS? in the forum Living With MS 1 month, 2 weeks ago
Love this! Thanks Jilly!
Carmen, RN, PPMS
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GABI became a registered member 1 month, 2 weeks ago
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Sofia became a registered member 1 month, 2 weeks ago
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Hi Sofia –
Thanks for joining us in the forums. I hope you’ll share your questions and comments in some of our forum topic areas. Please let me know if I can help you finding any information.
Ed
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Mary became a registered member 1 month, 3 weeks ago
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Hi Mary – Thanks for joining us in the forums. I hope you’ll join in and share your comments and questions in some of our forum topic discussions. It would be interesting to hear some of your thoughts about Mavenclad, especially compared to your six other DMTs. BTW, you’re just up the road from me. My wife and I live in Punta Gorda 7 months of the…[Read more]
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Ed Tobias started the topic Is MS a pain in your hips? in the forum Living With MS 1 month, 3 weeks ago
A lot of people with MS have hip pain.
Did you know that it might be related to steroids often used to treat MS symptoms? Are you doing something to treat it?
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Dr.Innoicent Opara became a registered member 1 month, 3 weeks ago
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Hi Doctor,
We’re glad to have you as a member of our forums and I hope you’ll share your insights as an MS physician in some of our forum topic sessions. Please let me know if you need any help navigating our site.
Ed
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Deb Becker became a registered member 1 month, 3 weeks ago
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Hi Deb,
Thanks for joining us in our forums. I was in the original Phase 3 clinical trial of Avonex back in the late 1990s and was then treated with it for about 7 years. I developed needle fatigue, wound up having my wife give me the shots and eventually changed DMTs to Tysabri, which was an easy treatment and much more effective than Avonex. I…[Read more]
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Ed Tobias started the topic Have you had the MS hug? in the forum Living With MS 2 months ago
It’s the hug you don’t want. The MS hug can feel like your ribs are being crushed. It can feel like a heart attack.
https://multiplesclerosisnewstoday.com/columns/2022/11/18/ms-hug-frightening-embrace-youd-rather-not-have/Have you had the hug? What was your experience?
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Katie Goodchild became a registered member 2 months ago
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Hi Katie,
Welcome to the forums. I think you’re our first member from Cyprus. It’s a place I’ve always wanted to visit.
I hope you’ll find useful info here and I encourage you to ask questions and make comments in some of our forum topic sections.
Ed
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Sharon Michelle Seamon became a registered member 2 months ago
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Hi Sharon –
Wow, six months for an appointment is crazy. But, we’re happy you joined the forums and hope you’ll find useful info here. I encourage you to ask questions and make comments in our forum topic areas. Also, in case you’re interested, I’ve written a little book for MS “newbies.” It’s intended to fill the gaps left by the difficulty in…[Read more]
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Jilly replied to the topic Does it matter what you call your MS? in the forum Living With MS 2 months, 1 week ago
good one Ed. We may as well rock it where we can.
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Ed Tobias replied to the topic Should Amazon be in the healthcare field? in the forum Living With MS 2 months, 1 week ago
Jilly, Sorry about your new year. I hear you and absolutely know how you feel (probably better than anyone else). There are people who think they know what’s best for us. Sometimes they do have a clue but usually they don’t. I love that you’re making toys for kids in the hood, btw.
Ed
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Ed Tobias replied to the topic Does it matter what you call your MS? in the forum Living With MS 2 months, 1 week ago
Great idea, Jilly.
Ed, SPMS 🙂
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Ed Tobias started the topic Have you thought about your brain recently? in the forum Living With MS 2 months, 1 week ago
Brain shrinkage, or atrophy, is one of the silent symptoms of MS and it has a direct impact on brain “fog” and other cognitive issues. My neurologist says “time is brain.”. https://multiplesclerosisnewstoday.com/columns/2022/12/09/managing-brain-atrophy-multiple-sclerosis/
Has your neurologist talked with you about brain atrophy?
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Jose Pabon became a registered member 2 months, 1 week ago
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Welcome to the forums, Jose. I hope you’ll find information here that’s useful to your son. Look around at our various forum topic sections. I encourage you to ask questions and add comments there.
Ed
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Jilly replied to the topic Does it matter what you call your MS? in the forum Living With MS 2 months, 1 week ago
Not really. As a joke sometimes I type PPMS after my name. Both my sisters have letter after their names. I can see people scratching their heads lol.
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Jilly replied to the topic Should Amazon be in the healthcare field? in the forum Living With MS 2 months, 1 week ago
Yes, I live in a democracy Ed. And no, my new year wasn’t very good. My sister, who thinks she knows what I should be doing ruined that day. She just can’t accept me being ok and making soft toys for the poor kids in my hood. I told her to lower her expectations of me as I will never reach them. Then told her to leave and to stay home. I am so…[Read more]
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Carlos H Sanchez became a registered member 2 months, 2 weeks ago
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Ed Tobias started the topic Does it matter what you call your MS? in the forum Living With MS 2 months, 2 weeks ago
Neurologists have, for years, classified MS in four categories: CIS, RRMS, PPMS, and SPMS.
https://multiplesclerosisnewstoday.com/columns/2022/12/02/are-stages-ms-still-useful-diagnosis/Does it matter what it’s called, except to insurance companies? Do you care how you’re classified?
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Hi Gabi –
Welcome to the forums. I hope you’ll ask some questions or make some comments about the information in our forum topic sections and that the information here will be useful to you.
Ed