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    • #11050
      RW
      Participant

      Hi Marty,

      My main goal is to help educate editors, journalist, physicians, governmental agencies, pharmaceutical companies and most importantly, MS patients and their caregivers, about the harmful effects that Gadolinium based Contrast Agents have in the brains, bones and organs of every one who is injected with Gadolinium.

      My mother was diagnosed with MS in 1974 and died in 1977 with Hodgkin’s lymphoma. (It is now believed these two diseases  have a common source.)

      Multiple Sclerosis has been front and center in my life for over 42 years. I have been on the most expensive MS medications and have been in drug trials. Still, there are no answers to why we even have this disease.

      I say I’ve had 10+ MRI’s with Gadolinium only because I don’t know the exact number I’ve received. What I do know is that Gadolinium has poisoned my body and not one single doctor or technician warned me about heavy metal toxicity.

      Along with the Gadolinium Toxicity group at http://www.gadoliniumtoxicity.com

      I am trying to warn you and everyone about the devastating effects of Gadolinium especially since most unsuspecting MS patients will be injected with  Gadolinium several times throughout their live with MS.

      I’m not sure why MS News Today does not want to inform its reader’s about Gadolinium and the fact that it will remain in their bodies for years. Maybe they are beholden to a pharmaceutical company and I’m just not aware of it. I can’t imagine that there would be any other reason for them not inform.

      Please check out the website above before you get any more MRI scan’s with a GBCA.

      Thanks for responding.

       

    • #11017
      RW
      Participant

      I do not know why when I highlight or underline or italicize any word on this forum it comes out as goobly hoop when you press send.

      It’s distracting to try to read. Hopefully they’ll be able to fix this glitch!

    • #11015
      RW
      Participant

      This is a notice from CHANGE.ORG

      Time for a Personalized Approach to Gadolinium Use

      In an April 10, 2018 interview “Diagnostic Imaging” spoke with the pharmaceutical company, Bayer’s Sheela Agarwal, MD and Joanne Hoener, RT to discuss the use of gadolinium-based contrast agents. Dr. Agarwal stated that “Historically, contrast dose has been an afterthought. In general, contrast is a small part of a radiology exam. The injector, the contrast, everything is dwarfed by the scan, the scanner itself, the radiation, the sequences. It’s taken time to evolve in terms of its importance, and everything going on for the past few years on this topic has made it that much more relevant.”

      Hoener believes that the name of the exact contrast agent and the dose should be documented in the patient’s record and should play a role in overall patient management. The patient’s history should be reviewed, specifically noting the patient’s previous contrast administration and “glean any information they can to be better informed about the contrast that might be given for that day’s procedure”. Special attention should be paid to patients with chronic illnesses and pediatric populations that may have multiple scans and accumulate multiple doses over time.

      Agarwal and Hoener recommend that patients report any post contrast symptoms to their physicians so data can be collected and documented, which will help with patient management in the future. They are calling for the research community as a whole to conduct studies on the matter. Agarwal said “Documenting this information about gadolinium retention and having it available in the patient record will be very important to inform that research”.

      Agarwal states that gadolinium, like all drugs, should have its risk-benefit profile considered each time it is being used. Radiologists should review the reason for the scan, if there is a need for contrast and if so, which type and dose should be used. He said that “Each patient needs to be evaluated as an individual. And, the reason they’re coming in for the exam needs to be evaluated as to the value that a contrast agent can provide. That applies over time for the follow-up exams and the amount of contrast they’re exposed to cumulatively over time. There are things that radiologists are well-versed in when it comes to radiation dose, but the same analysis could be applied to contrast dose, as well”.

      To read the full interview: http://www.diagnosticimaging.com/contrast-agents/why-you-need-track-contrast-dose-exposure

    • #11014
      RW
      Participant

      Do you think Barkhof will warn MS patients, that the Gadolinium Based Contrast Agents (GBCA’s) that he will be injecting in them for these MRI scans, is a  toxic heavy metal  that is known to be retained in the brain, bones and organs of patients with normal renal function?

      Do you think he has an ethical and moral obligation to inform unsuspecting MS patients about Gadolinium Toxicity?

      For more information go to:

      http://www.gadoliniumtoxicity.com

       

    • #10982
      RW
      Participant

      Excellent Ed! It’s encouraging to read that you will investigate the Gadolinium Toxicity group and The Lighthouse Project website.

      With you playing such an important role as a professional journalist having such a broad and huge mandate writing here in the Multiple Sclerosis News Today website, along with being an MS patient yourself, it struck me as odd that you said that you’ve written all that you’re going to write on this subject, at least for now.

      Instead of closing down the conversation on Gadolinium Toxicity, I hope you will bring this subject up with your editorial staff so that they can be informed of the devastating effects that Gadolinium Based Contrast Agents are having on millions of patients every single day. After all, this is called the MS News Today website.

      I personally can’t think of anything more important to your MS readership than to get the facts out to them with clear, concise, and compelling news that not only affects the MS patient but also their loved ones too.

      You said that responding to these stories and columns is the best way for me to spread the word about Gadolinium contrast agents on this website. If this is the case, the chance of all the readership reading my little post that will be quickly lost among all of the other posts isn’t encouraging.

      Maybe I was foolish for expecting and believing that anyone dealing with or being an advocate publication specifically for MS sufferers would not brush off such a serious subject.

      This could be the exact reason that millions of MS patients know absolutely zero about Gadolinium Toxicity.

       

       

       

    • #10980
      RW
      Participant

      Hi Ed,

      Thanks for your message and directing me to your article on this site.

      I trust that you’ll check out the gadoliniumtoxicity.com website being you have voiced your own concerns regarding Gadolinium. The website has a ton of information on the nexus of Gadolinium Toxicity and it will also direct you to a MRI Gadolinium site at Yahoo.com where over 500 members have congregated to post and share and educate and sometimes express shock and confusion about not being told about the GBCA’s toxic effects not only on their bodies but also how it has impacted their lives forever.

      Please keep me posted on your search through this maze. I’d also like to know if there is a way that I could submit an article to this site? Just trying to get the word out far and wide!

       

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