Forum Replies Created

  • Dave Wright

    Member
    June 6, 2023 at 10:45 pm in reply to: Treat MS Symptoms or Find a Cure?

    Hi Ed,
    My girlfriend of 3 years has had RRMS for close to 30 years. Her EDSS is between 3 & 5. She is doing well. No relapse for almost two years with no Rituxin infusions either. Doing well. She would like to dance again someday. A cure would ideal. The article on the research from John Hopkins on the novel treatments with nano particles in Treg cells are looking very promising in early mice trials, actually “reversing” the disease and curing some of the mice that were infected with the EAE,the MS equivalent for mice. Any thoughts on this?

  • Dave Wright

    Member
    April 19, 2023 at 10:04 am in reply to: Medical Marijuana – Yes or No?

    My girlfriend has RRMS for the last 25 or so years. No progression to SPMS, as she has not had a relapse in the last 3 years and has not had a Retuxin infusion for over two years. She’s between 3.5 to 5.5 on the EDSS. She is 57 years old. She has been using cannabis for many years and it seems to keep her progression down pretty well. She does smoke the flower, of which I’m trying to get her to go to edibles. She’s been on the Retuxin as long as I’ve known her in the last 3 years. I want her to talk to her neurologist about switching over to Briumvi, as it is a specific MS DMT, whereas Retuxin is more of a Cancer drug. Thanks. Dave Wright