Forum Replies Created

  • Jordan Rousch

    Member
    January 26, 2019 at 11:51 am in reply to: MS can be….how would you complete this sentence?

    MS can be unforgiving, I’ve learned a lot about my personal case with it and learned I can’t trust my body to recover on its own. It’s important I listen to it to keep MS controllable.

  • Jordan Rousch

    Member
    December 19, 2018 at 10:11 am in reply to: MS and pregnancy

    I do not have children so I cannot add to this but came here looking for responses since I’m 25 and that is the big question for me and my husband currently and the years to come. Not sure if I want to risk it. Where can I find the column you wrote?

  • Jordan Rousch

    Member
    December 18, 2018 at 8:59 am in reply to: Yet Another Mysterious Illness in My Life with Multiple Sclerosis

    Yes! I’m constantly being told everything looks normal on blood tests, Urinalysis, and MRI stable. My lower back has sharp pains but no UTI, heart palpitations but not cardiac, and dizziness but not MS. I have access to my MRI reports and because my lesions are not highlighted with contrast or any new since February that is “stable” but I don’t understand why MDs don’t look st the whole picture and contribute my symptoms to MS or previous existing lesions.

  • Jordan Rousch

    Member
    December 18, 2018 at 8:56 am in reply to: Have you tried chiropractic therapy to help your MS symptoms ?

    Yes!! I currently am going to one and I wish I had been going for years. My vagus nerve was bunched and tight (for lack of the correct terminology) and after 3 adjustments my vertigo/dizziness subsided, my blood pressure regulated, and the faint passing out feeling has also subsided for two weeks. These symptoms had been ongoing without relief for 3 months. But I agree with the other post, not just an chiropractor will do. Even the one I go to says you have to do your research prior to picking one.

  • Hi Debi,

    I always attributed mine to stress and lack of sleep. I definitely have them more often and consistent when I didn’t sleep well. I’ve had a stressful two years so I also assumed that was the cause but they’re very episodic. It will happen consistently for a few days then go away, recently (about a month ago) it came back and was accompanied by an increase of dizziness. MRI was stable so not really sure. It lasted for about a month.

    I have been doing more and more of my own research the past two years though once I got a positive blood test result of ebstein barr. I never knew I had it in the first place, but from what I found was ebstein barr with autoimmune conditions or immunocompromised people can cause a wide range of symptoms: increased heart rate and heart palpitations being two of them.

    Have you ever been tested for ebstein barr or have a known past occurrence of it?

  • I have them often, nothing is found but MS doctor says they’re not MS. Been a few times with this complaint and I have been told by a few doctors at mount Sinai that it is “unheard of” to have an MS lesion cause heart palpitations. Idk to the extent of that though.