Multiple Sclerosis News Today Forums Forums Living With MS Have you ever experienced heart palpitations, were they MS related

  • Have you ever experienced heart palpitations, were they MS related

    Posted by Debi Wilson on October 25, 2018 at 5:29 pm

    Have you experienced heart palpitations, did you feel they were MS related?  Or did you discover  they stemmed from another issue?

    kb2 replied 1 month, 2 weeks ago 5 Members · 11 Replies
  • 11 Replies
  • Jordan Rousch

    Member
    November 2, 2018 at 11:37 am

    I have them often, nothing is found but MS doctor says they’re not MS. Been a few times with this complaint and I have been told by a few doctors at mount Sinai that it is “unheard of” to have an MS lesion cause heart palpitations. Idk to the extent of that though.

  • Debi Wilson

    Member
    November 2, 2018 at 11:51 am

    Hi Jordan,
    I have PPMS, I experience heart palpitations also. They started last December after my husband passed away. I have had them a few times since then. My doctor feels they are not MS related but, instead due to anxiety. I had some heart tests and they came out fine. What about you do you feel yours could be stress or anxiety related? How often do you have them?

  • Jordan Rousch

    Member
    November 2, 2018 at 1:56 pm

    Hi Debi,

    I always attributed mine to stress and lack of sleep. I definitely have them more often and consistent when I didn’t sleep well. I’ve had a stressful two years so I also assumed that was the cause but they’re very episodic. It will happen consistently for a few days then go away, recently (about a month ago) it came back and was accompanied by an increase of dizziness. MRI was stable so not really sure. It lasted for about a month.

    I have been doing more and more of my own research the past two years though once I got a positive blood test result of ebstein barr. I never knew I had it in the first place, but from what I found was ebstein barr with autoimmune conditions or immunocompromised people can cause a wide range of symptoms: increased heart rate and heart palpitations being two of them.

    Have you ever been tested for ebstein barr or have a known past occurrence of it?

  • Debi Wilson

    Member
    November 2, 2018 at 2:21 pm

    I had mononucleosis (EBV) when I was 14. I have never been tested for EBV in all these years, though. What do you do for your palpitations when you have them?

  • Ruth

    Member
    November 4, 2018 at 3:43 pm

    I also had mono as a teen.  Have palpitations occasionally – I assume stress-related.  I have taken Atenolol for it, with good results.  I’ve never been tested for EBV – imagine it would be positive.

  • Debi Wilson

    Member
    November 4, 2018 at 4:25 pm

    Hi Ruth,
    I take a little extra atenolol when I have palpitations, also. My Doctor okay’d it. Anxiety is hard to get away from when you have MS, since our nerves are so affected.

  • Micki

    Member
    November 6, 2018 at 7:26 am

    I have and never considered they would be MS related – and docs never said a word.   Interesting – seeing doc this month and I’ll add to my list of questions.

  • Debi Wilson

    Member
    November 6, 2018 at 9:55 am

    Please, share what he has to say with us, Micki!

  • Micki

    Member
    November 6, 2018 at 11:31 am

    Debi, I can say that I was put on a med and, of course, I can’t remember the name – DANG MS BRAIN for energy.   It over stimulated me and I actually had panic attacks.    Realized what was going on and threw them away.    It might have been nuvigil but not sure.   Panic attacks and chest pressure.

  • Debi Wilson

    Member
    November 6, 2018 at 12:04 pm

    Oh no, Micki! Isn’t that frustrating when medicines can make symptoms worse or create new issues! I’m glad you got rid of those!

  • kb2

    Member
    May 28, 2024 at 11:34 am

    I have Afib. After MRIs, Stress tests, etc, the cardiologist concluded there is no underlying physical issue with my heart. I am being treated for Afib but the meds don’t always work. I also have shallow breathing and a slow breathing rate, so my Ox Sat is also sometimes low. Neurologists say this is not from my MS 🤷🏻‍♀️

    The Afib is sporadic. I told doctors over the years I felt like something was off with my heart. My new cardiologist believed me and gave me a monitor for a longer period of time and then discovered it. Stress can trigger it but it is not anxiety or a panic attack.

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