This topic contains 15 replies, has 4 voices, and was last updated by  Jordan Rousch 8 months, 3 weeks ago.

  • Author
    Posts
  • #14742
     Debi Wilson 
    Member

  • #14749
     Anonymous

    MS can be perplexing, with a dash of worry.

  • #14753
     Debi Wilson 
    Member

    Very true!

  • #14754
     Jacqueline 
    Participant

    MS can be…….a nightmare, it takes ones future away, even though one is still living…

  • #14770
     Debi Wilson 
    Member

    Agreed!

  • #14771
     Anonymous

    MS can be challenging…

    I have come to learn that any illness is a nightmare, since I have found myself in a nightmare, but on saying that, I have worked hard on my mental health over it.  Yes everyday I wake up I say, “oh no not this again”.

    It’s important to be kind to yourself.  The internet has become my life, we all have everything at our finger tips these days, you just have to seek it out.  The universe has a way of giving you what you need, not what you want, but what you need.

    Jilly.

  • #14773
     Debi Wilson 
    Member

    Well said, Jilly!

    • #14789
       Anonymous

      thanks Debi

  • #14776
     Jacqueline 
    Participant

    Yes sad to say the Internet has also become my life, my world…I spend far too much time on it…I communicate with friends on sites like ours for company, a sad world when what we really need-want is actual face to face communication, and more importantly…some humour and laughter, if just to take our minds off our illness…

    Some illnesses are more of a nightmare than others, and what I mean by that, many are in the end curable, but not ours sadly and unfortunate…

     

    Jackie..

  • #14785
     Debi Wilson 
    Member

    I agree, Jilly and Jackie, face to face socialization is good and needed. But, aren’t we lucky we can still meet others, share experiences, gain new friends and important information from the comfort of our own home!  Imagine how isolated we would feel if we didn’t have places on the internet where we could go to connect and share with others. 🙂

  • #14788
     Jacqueline 
    Participant

    Debi…the internet is a Godsend but, many now abuse it…it can also be a dangerous place…but we are safe in here…

    • #14790
       Anonymous

      Hi Jacqueline, pretty name.

      Don’t worry yourself about the dark aspects on the internet, you know by now how to stay safe on the internet, I hope. No dating sites, never send money to strangers, and if you get an email from someone you don’t know, don’t open it then send it to spam. Simple.

      The only visitors I get are my roommates friends, they are all old men lol. Both my older sisters live in different cities in New Zealand, but we chat on the phone now and again. both my parents are gone, lost my mom when I was 22 and my dad when I was when I was 34. I have no children of my own.

      MS can be isolating.

  • #14796
     Jacqueline 
    Participant

    Jilleen – Jilly

    …like you, I am computer awareness ” savvy ” I am very aware of these con artists…

    Oh Jilleen…very similar to me, I lost my mother when I was 26, my father when I was 37…

    • #14821
       Anonymous

      wow Jacqueline, you where young when you lost your parent too.  It was a tough time, all of it really, still don’t rightly understand death.  My own will come one day, hope I am ready for it.

      Glad to hear you are savvy, good word ‘savvy’, I like it.

      I am trying to be savvy at the moment, trying to figure out what people want, then give it to them lol.  I know that sounds like a big job, but I am trying to narrow it down.

      MS can be an opportunity to find something new.

      Thanks for chatting  Jacq, can I call you that?

  • #14878
     Jordan Rousch 
    Participant

    MS can be unforgiving, I’ve learned a lot about my personal case with it and learned I can’t trust my body to recover on its own. It’s important I listen to it to keep MS controllable.

    • #14879
       Debi Wilson 
      Member

      That’s a good answer, Jordan. And, you are right we know our bodies and how  we  feel better than anyone .

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