Forum Replies Created

  • Quynh-Loan Luong

    Member
    December 12, 2019 at 4:09 pm in reply to: Are you over 55 and deciding if Ocrevus is right for you?

    Thank you Ed.  Now I have been hoping for FDA approval of the PoNS.

    Loan

  • Quynh-Loan Luong

    Member
    December 12, 2019 at 3:35 pm in reply to: Will you be asing your neuro about Mayzent?

    I have been on Mayzent for SPMS for a week now.  So far so good.  It’s much easier than Ocreveus and the drug is shipped to you.

  • Quynh-Loan Luong

    Member
    December 12, 2019 at 3:27 pm in reply to: Are you over 55 and deciding if Ocrevus is right for you?

    Hi again!  My side effects were just minor skin infections.  But, Ocreveus didn’t help me. I read on one of the forums that it is more effective with men.   I was switched to Mayzent this month – so far so good and easy too – a small pill a day.  I am 58 and still limp with a walker (spasticity over half of my body, the other half is weak) .  Don’t let them tell you you are too old.  Life expectancy is much longer now.  An early happy birthday to you!

  • Quynh-Loan Luong

    Member
    November 13, 2019 at 2:42 pm in reply to: Too old to be treated?

    Don’t let your chronological age dictates your treatment.  I’ve seen people in their 70s and 80s more youthful and active than people in their 30s or 40s.  At the first meeting with my neuro, he told me that his other MS with as much brain damage lived to 93.  I was 54 at the time.  Older now and looking forward to beating that record and using more therapeutic developments.

  • Quynh-Loan Luong

    Member
    November 12, 2019 at 2:00 pm in reply to: Are you over 55 and deciding if Ocrevus is right for you?

    I am 58. I was on Ocrevus when it came out and I was ~55. It didn’t help me. I was downgraded from RMS to SPMS.

    Loan

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