Lola Dean
Forum Replies Created
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I’ve had MS for 13 years and all I hear is that I should be happy about this or grateful about that. Quite frankly, after so many doctors and let downs and “friends ” who really don’t want to know and just say “take care of yourself” or ” Call me when you feel better”. I’ve lost all friendships and am completely isolated except for going to doctors. No one gets it nor do they want to. I want a response other than “fine” when people ask how I am. It’s an automatic question for which an automatic response is requested but until I can come up with a real answer, I’d rather be alone. Even the MS Society pushes toxic positivity with smiling faces advertising toxic drugs  with happy little phrases. I much prefer MSAA. They tend not to be as condescending. Call me bitter, sad, whatever. Just don’t call me positive. There’s nothing positive about MS. I have lost every friend and family member because they don’t understand and when I try to explain, they tell me I’m whining.
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My state is still only vaccinating healthcare workers. I signed up but waiting. The folks I’ve spoken to say the second shot is a bit tougher than the first. If and when I can get it, my first shot will be in my dominant arm and the second in the non dominant side. Good luck!
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Yay! Love avocados and eat them all the time. I would love fresh coconut water to be on the list.