You should have a look at The Root Cause Protocol

https://therootcauseprotocol.com/

Theo,

<font color=”rgba(0, 0, 0, 0)” face=”inherit”>I trust my reply to you comes </font>across<font color=”rgba(0, 0, 0, 0)” face=”inherit”> in the way I intend it to…</font>

My first thought when reading your message was:

While you are waiting and watching for the results of studies that will not be complete for years in many cases, MS…

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Yes, I checked out one or more clinics in California as well. I believe specifically one in Southern California close to were I lived at the time.

They did NOT perform chemo to wipe out the immune system. I learned over time that a procedure that does not chemo the immune system is NOT aHSCT.

Checked out clinic in South Americas well. …

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I was just going to ask if this would help with Secondary progressive. It sounds like no. Am i correct?

Unfortunately, I was diagnosed 2007/2008 and did not learn of aHSCT until late in 2018 and headed for Moscow 5/2019. By that time my RRMS was transitioning to SPMS, which lowered my chances of successful aHSCT, But, after reviewing my MRI, Dr. Frederinko (Moscow) thought possibilities were good. I believe I got hi, the MRI before making…

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Thank you for sharing Theo! Are you leaning on taking this approach? Are you on a DMT now?

When I started PT years ago, my therapist would always bring up my core strength and how I needed to work on it. I didn’t understand at the time what that was and how it can affect me.

Years later and I get it.. My core strength has changed and realize how important it is!

Have you noticed a change in yours since diagnosis?

Three trials I’m watching compare autologous HSCT with high-efficacy MS treatments. In the US, the NIH-sponsored phase 3 BEAT-MS trial (NCT04047628) studies treatment-resistant relapsing MS and is expected to finish around 2029. In Europe, the phase 3 RAM-MS trial (NCT03477500) compares HSCT with high-efficacy treatment; I’m watching for its…

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Haven’t looked into this ! What have you found?

With experimental treatments, it will take time unfortunately. Are you on a DMT?

Interesting! I’m happy you noticed improvement with your hair and helped with confidence. That’s always a plus! 🙂 Biotin also helps with this area.

How has the diet been for you?

I’m trying 2 spoons in my morning smoothie but thinking about stopping as ChatGPT says I get enough on my Wahls paleo diet anyway.I think my hair has improved as I always just had a number 1 all over as my hair was dead and there were a few patches.now ive actually got some confidence and it’s growing back better.I was also taking biotin…

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Great that you took the initiative to learn and create! I hope you start to see/discovrr more benefits.🙂

Some people have been diagnosed for many years, while others have just started the journey.

Would you change anything from the beginning of the diagnosis? Maybe treatment or the whole approach to how you manage?

Does anybody have any experience or thoughts on nicotine treatment?

Very optimistic about the CAR-T approach. The Chinese trial with in vivo modification of naiive T-cells could be a game changer. But as with everything, progress to approval takes much too long for people with this horrible degenerative condition.

We’ve frustratingly just gone back to the overcautious and slow norm after Covid showed the…

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After reading that collagen supports bone health, hair, skin, and nails, I started adding it to my smoothies. I’m hoping to see a difference!

Does anyone take collagen? Notice a difference?

As I said I read the papers by Renvue Sandyk dated late 1990 and it was treatment at 7.5picotesla so I started to work out how to do this and I picked a a Spooky2 xm generater and a feeltech fy2360h so I then spent some time working how to programme them to work in manual mode which I managed I found the feeltech was slightly quicker to set up.

Thank you for sharing! Sorry that the stem cell therapy didn’t work. Happy that you continue to stay active and do what you can to stay on top of your health.

Looking back, would you have done HSCT?

I hope the appointment goes well and you get some answers!

That’s interesting that you tried that Transcranial method. I had to research it to understand what it does. 😄 Where did you get it from? How did you decide to try that out?

That’s great! It’s nice to hear success stories! I was actually gifted Everyday Miracles by one of his patients whose story is in the book. I still have to read it!

📚

For those with PPMS and SPMS who haven’t responded well to available treatments. Check out the study!

study: FDA gives go-ahead for trial testing cell therapy for progressive MS

I know someone that had the procedure successfully done in Russia. She has been symptom free for 15 years. She recommended the book Everyday Miracles by Richard K. Burt. It was very informative. Unfortunately, not effective for progressive MS, which is what I was diagnosed with in 2024.

How long till you started feeling a difference?

Being diagnosed with MS doesn’t have a set time/day. It comes when you least expect it. For some, it created a pause or stop to certain goals, tasks, or projects they wanted to accomplish. In this column, Desiree (Hey Desiree!) talks about starting her home bakery despite the uncertainty of symptoms. 🍰

column: …

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No nothing I not seen him for about 2 to 3 years but I got a appointment in October. I tell him then. Now stopped taking the lion’s mane after my last appointment I then found that after not taking the extract I started to lose my sensations again. After a couple of months my wife didn’t want me to take the extract she thought it made my… Read more

well I’ve had MS x > 30 years, I now have chronic progressive MS, I was relapsing remitting x 20 years, now chronic progressive. I was a family doctor for 30 years and retired 8 years ago on my neurologist’s advice ” you just aren’t remembering things well enough Adrian, it’s not safe for you to continue practicing” so I retired a few…

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Thank you for sharing this information & your experience. I have heard that the sooner you get it from diagnosis, the better. How long did you wait to get it done?

😦 Sorry that happened to you! That must have been scary. How long were you on it?

Oh wow. I wasn’t aware that you can take a DMT after going through the process. What changes did you notice after it? Do you still deal with certain symptoms?

Hmmm.. 🤔

That’s a good point. It’s still in its beginning stages but maybe this is to eliminate a DMT. That would be even better!

Wondering how this affects combination with a DMT especially the DMT is Tysabri. Wondering if a MS Patient would have to switch to a B cell DMT in combination with this new study?

I had HSCT 9 years ago at Northwestern when the stage 2 trials were ongoing. Since then I would say that I’m doing better than I would have without it, but I think I would have remained on a DMT that was effective for spms looking back. I had leg issues, and I am still walking 17 years after diagnosis, I think the smoldering inflammation could…

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5/2019 aHSCT (Moscow)<div>

Since HSCT:

HALTED RRMS progression

No new lesions

No exacerbations

No DMTs being used

 

Only HSCT provides potential to HALT MS progression (works in most cases, be sure to research locations & efficacy, cost, etc.).

NOT A CURE:

They will not tell you this is a cure, but only a way to halt MS progression…

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Lemtrada eventually took out my thyroid.<div>

 

Could not walk for 5 days after first course of infusion.

 

 

 

</div>

It took some time, but it’s great you were able to get that feeling back. Has your doctor said anything about it?

Interesting study on using red blood cells to help the immune system recognize myelin as not a threat!

study: New MS cell therapy builds immune tolerance to protect myelin

🔹What are your thoughts?

As I said first posted when I read about lion’s mane you have to factor in when taking it by mouth you lose a great amount to stomach acids. When I first started taking it I was taking it I finished 1g after 1hr. I noticed after 12 weeks I found I could feel texture of carpet with my feet and to past the pin pick test took approx 1 year.

That’s great!

As I said I got heat sensations back to my feet which I had lost due to ppms.

If you are looking for information on support groups, I am adding the link here!

link: Multiple Sclerosis support groups | Multiple Sclerosis News Today

Hey Alan! That’s interesting. It seems like the lions mane can help balance body temperature. Did you only notice your temperature sensitivity as a change? Anything with joints/bones?

Thanks for sharing! That’s awesome that you decided to do it & has changed the course of your health. I heard about Mexico & Russia as top places to get it done!

I love hearing about people’s experience who have gone through it. Like you said it’s a lot of work and everyone is different.

What changes did you notice from getting it?

I had aHSCT 2 years ago in Mexico the top place to get it there are 3 places in the world that are very good. Lots of “snake oil” places so do research. It has stopped my rapidly evolving ms and no new lesions since I had it done. I wish I had it done sooner but I didn’t have the money or the research I had to crowd fund for most of it. I was…

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