It’s always great to have a positive attitude when dealing with health issues but we are human and it’s not always the case. Sometimes we just need to vent, rant about what is going on in our health journey.

Ben does that perfectly in his latest column:…

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Taking a DMT is helpful for some, but it can come with unwelcome changes. Have you experienced serious side effects from a DMT? What was your experience?

Many people in the MS community have mentioned how cannabis has helped with their spasticity or spasms. Even those who have issues sleeping!

Have you tried this for spasticity, stiffness, or spasms?

Here is an article about cannabis based therapies: Certain cannabis-based therapies may help relieve spasticity in MS

I started adding electrolytes to my water (only day 2 😄) because I wasn’t feeling great last week and thought I needed to hydrate more.

I used to drink Vitamin Water and always noticed a difference in my energy. Coconut water too, which I love!🥥💛

Curious, what are people’s thoughts on electrolytes? Does it help you?

That’s a good point that you brought up about accepting, giving in to needing an aid. It’s not an easy thing to do or accept. Glad you are doing what you can to prevent those falls. Thanks for sharing!

Did you just buy the aids, or did you have to go through a certain process or program?

I’ve never gotten my insurance to pay for a device. That being said, in my prior life I sold insurance. The companies are known to deny claims and move forward. I agree that getting your doctor involved in the process as well as having them hopefully understand the key words to push your claim thru is KEY.

 

The most difficult part of the…

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So sorry to hear that, Diane 😔. Are you able to get around without one? Is anyone around to help you?

I would assume your neurologist would help in the process or even write a letter if that is needed.

Hey, Leslie! That is awesome. Having it for many years and in remission is the goal. Is it just the exercise and DMT that contributed to that, or did you also change anything in your diet?

I have been exercising seriously with weights and walking for 33 years. I believe it is a large part of my success navigating MS. I have had MS for 38 years and am able to walk unaided. Exercise and medication are the keys. Definitely seek out one of the disease modifying drug options for MS. I have been taking Ocrevus for 9 years. I am…

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I have trying to get one through my indurance. This the worst process that I ever had to go through. I started in February. It is now August. Still no scooter or wheelchair.

I have received denial letters with no explanation.

I am convinced my insurance is giving me the runaround.

Do you use any mobility aids? What was the process like for getting one?

Nope…just the Eagles, and lots of them!

Hey Greg! That’s great—something I need to get back into doing. PT is also helpful. Have you been doing it since your diagnosis?

I also do resistance training 3 times per week. In my case I believe it really helps. I also started a PT program. I meet with my PT 2 times per week. She has me doing exercises to improve my function and I’ve noticed benefits from that too.

So cool! Any other animals?

🤩 Amazing! This trip looks like it was relaxing and a great experience. The water looks perfect, too. Thanks for sharing these with us. ⭐

Got to see alot of bald eagles though!

The cruise experience was awesome! Didn’t get to see any whales breaching or anything but the entire trip was memorable!

About 5 years ago! We flew into Seattle then Juneau! Then a brief trip from Juneau….cant remember where to, but it was lovely! Here are a couple photos!

Would love to go to Alaska! Did you recently go there? How was the cruise experience?

That’s great! How long have you been doing it? Has it helped you?

Yes, I lift weights three days a week.

Cruise through and around Alaska was really awesome as it wasn’t as well hot! Food for thought-avoid the heat!

What are some of your favorite places to go during the summer? Do you have a place that just makes you happy?

This could be the beach, local state fair, boat docks, fishing, anything!

I love anything by the water or being in coastal towns. Definitely captures the summer feel!
🌊🐬

How do you take care of your mental health while living with MS? 🧡

I find these tips super helpful in my personal self-care journey: https://bit.ly/4gUAHxt

I’m sure many of us have heard the benefits of resistance training, but came across this article talking about it protecting nerve cells.

article: Pilates, resistance training exercises may protect nerves in MS

(This is the article I was referring to, @Ary )

Does anyone participate in resistance training?

I hear you! Sometimes you know who you can tell the real answer to. Peace is important.

It’s hard depending on others or learning to! Hopefully you get good news in your next appointment🙌🏻

My husband has MS, but as a caregiver, this story is mine, too. – This is good!

LINK: My husband has MS, but as a caregiver, this story is mine, too

I think people can forget that those caring for others with MS deal with it too, of course, in a different way. 💙

Yeah, used to be able to drive a car…right side numbness took that away! Now I have to sit back and watch my wife and her mother do things, that we used to do!

Don’t want my wife to stop living because of me…

Going way back (3 decades) used to be able to dunk a basketball! Whew, just hoping for a new and improved DMT! Been on Ocrevus for 5…

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