I’ve got my own Lemtrada ann [of sorts!] coming up. In July my 5 year monthly monitoring period will be up – I will no longer have a visit from a phlebotomist, obvs taking a blood sample [& collecting a urine one!].
Know it did u good but actually made me more disabled then I was at the time. Wish hadn’t taken it but hey, who knew?
Still, don’t seem to have got any of the nasty side-effects. Except UTIs – from it.
Just chatted to my Neurologist and agrees thinks I’m now secondary progressive. Only thing he can at present offer is more chemo.
No need for commiserations Ed. I’m a republican – in the very British sense. I’ve always been against having a monarchy. I’m sorry for the Queen, but no more so than for anyone who’s had such a long successful marriage & just lost their partner.
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