I’ve got my own Lemtrada ann [of sorts!] coming up. In July my 5 year monthly monitoring period will be up – I will no longer have a visit from a phlebotomist, obvs taking a blood sample [& collecting a urine one!].
Know it did u good but actually made me more disabled then I was at the time. Wish hadn’t taken it but hey, who knew?
Still, don’t seem to have got any of the nasty side-effects. Except UTIs – from it.
Just chatted to my Neurologist and agrees thinks I’m now secondary progressive. Only thing he can at present offer is more chemo.
I’d rather not, thank u!