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    • #20763
      Ed Tobias
      Keymaster

      It’s been three years since I completed my second round of Lemtrada and I’ve been doing well. Here’s an update. How are you other Lemmies doing?

      An Update on My Lemtrada Journey, 3 Years After Round 2

    • #20765
      John Connor
      Keymaster

      Hi Ed

      I’ve got my own Lemtrada ann [of sorts!] coming up. In July my 5 year monthly monitoring period will be up – I will no longer have a visit from a phlebotomist, obvs taking a blood sample [& collecting a urine one!].

      Know it did u good but actually made me more disabled then I was at the time. Wish hadn’t taken it but hey, who knew?

      Still, don’t seem to have got any of  the nasty side-effects. Except UTIs – from it.

      Just chatted to my Neurologist and agrees thinks I’m now secondary progressive. Only thing he can at present offer is more chemo.

      I’d rather not, thank u!

       

       

       

    • #20791
      Ed Tobias
      Keymaster

      I didn’t realize you were ahead of me, John. I still have another year of getting jabbed each month. I’m sorry you didn’t have the success I had.

      I’ve been watching Prince Phillip’s funeral today. Very sad. My condolences to you and my other British friends.

    • #20795
      John Connor
      Keymaster

      No need for commiserations Ed. I’m a republican – in the very British sense. I’ve always been against having a monarchy. I’m sorry for the Queen, but no more so than for anyone who’s had such a long successful marriage & just lost their partner.

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