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  • John Connor

    Administrator
    April 12, 2021 at 12:07 pm

    Hi Ed

    I’ve got my own Lemtrada ann [of sorts!] coming up. In July my 5 year monthly monitoring period will be up – I will no longer have a visit from a phlebotomist, obvs taking a blood sample [& collecting a urine one!].

    Know it did u good but actually made me more disabled then I was at the time. Wish hadn’t taken it but hey, who knew?

    Still, don’t seem to have got any of  the nasty side-effects. Except UTIs – from it.

    Just chatted to my Neurologist and agrees thinks I’m now secondary progressive. Only thing he can at present offer is more chemo.

    I’d rather not, thank u!

     

     

     

  • ed-tobias

    Member
    April 17, 2021 at 11:10 am

    I didn’t realize you were ahead of me, John. I still have another year of getting jabbed each month. I’m sorry you didn’t have the success I had.

    I’ve been watching Prince Phillip’s funeral today. Very sad. My condolences to you and my other British friends.

  • John Connor

    Administrator
    April 19, 2021 at 8:10 am

    No need for commiserations Ed. I’m a republican – in the very British sense. I’ve always been against having a monarchy. I’m sorry for the Queen, but no more so than for anyone who’s had such a long successful marriage & just lost their partner.

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