Jacqueline
Forum Replies Created
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Garnet…
…you have just this minute reminded me that since moving to our now home deep in the valleys and surrounded by wildlife, a truly scenic spot…I can now sit outside and enjoy the birds that come to my feeder, ( I have three, including a wooden ground feeder ) and I feel at peace listening to the sounds of the birds….this is where I get my most spiritual enjoyment…Oh and I have seen other wildlife come into our back garden such as a young fox, pheasant, partridge, weasel or stoat, not sure which…Oh and up in the valleys there are now cows…yet the other side of those valleys and hills is the sea…we are near the coast yet we could be in the countryside..I do have the best of both worlds…although I prefer the countryside and nature…I am spiritual where the person I live with is not, and doesn’t appreciate the scenic views as I do…
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Debi I would like to but it is a 46 mile journey and last time we got their just as it was starting and as their are only four raised beds, they were already taken but…thankfully to one lady who gave her bed up for me ( not sure she had MS, after I saw how fast she left the building, ) where she went down onto the floor…There are only four beds and I am assuming usually only that many usually attend this class…Of course the floor would not be an option for me, and the thought of this happening again after the lengthy journey where I couldn’t be expecting others to give up their bed for me, just a shame not more raised beds were available…It would be a therapy I would recommend to others to try who have MS, as I do believe it has some form of healing benefits…causing our brainwaves to change…
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Not so much a music therapy but more a sound therapy when I registered with an MS Therapy Centre three months ago…was an alternative type therapy called a Gong Bath…no not an actual bath as the title suggests but, surrounding oneself in a bathing of sounds and vibrations by the person using a set of varying in sizes gongs, whilst putting you in a meditative state…To date I have had two sessions and not sure what if anything was happening but, I did sense something of a vibration on the lower part of my leg, and on the next session my toes had some twinges….so I know the sound waves were doing something…all in all, i found the sessions very relaxing and the sounds loud but not unbearable…Of course this is not a miracle cure, and told the effects would last around an hour…
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So many animal – pet lovers on here, it warms my heart… as with cats and, or dogs, what one gets from them is genuine… nothing false, but genuine affection and love…one cant ask nor expect from them, anything more…
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At the same time of my PPMS diagnoses, I was also told I had Meralgia Paresthetica ( top of right leg, inside groin area ) of which I suffer daily… Although past MS professionals have since agreed it is part and parcel of my MS but still no one has offered me anything…
Oh yes, the burning and painful toes, and the mild pins and needles of the right hand are also my daily woes…again, nothing has ever been prescribed for either…
Jackie…
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Ed…ha ha, I get it now…and oh how it is good they dont know their age…
In hindsight 18 months or so before my starting’s of ” something strange happening to my walking, ” but I couldn’t make sense of what it was ” and still during the time I was still walking my Blue Roan Cocker Spaniel who was just coming up to age 10, she too was suffering cancer, with a 3 months to live we were told September, come the Christmas 2013 we lost her….She was having walking problems, kept getting disorientated with where she was going, and I had to guide-coax her home, we never walked far just around the block…Well little did I know that 18 months after her loss, I too would be having my own walking problems…As they say, ” we never know what is waiting for us round that next corner ” I know I didn’t have a clue…but here it is, and it is here to stay..
Jackie..
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No there is nothing for PPMS apart from the now newly licenced drug but I very much doubt it would be offered to me as usual there will be a criteria that has to be met…To be honest I am happy being drug free as I truly believe long-term drugs to be damaging, and may cause other illnesses that we then have to deal with…of course if there was a ” miracle ” drug that was guaranteed to take all manner of MS away, guess I would be first in the queue but even then I would have to weigh my options up if there was any remoteness that this drug may cause another serious – life threatening future…My choice to not pill pop is purely my choice, and that goes for most med’s that my local GP has tried to prescribe to me, such as for depression…Oh yes, pop a pill and all your troubles will go away, how I wish…
Jackie..
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I am and have always been a dog person, dogs are-were my life…Sadly all three have now departed, our last furbaby we-I lost 17 months ago…We have one Cocker Spaniel left, he is now a senior dog but belongs more to, and is closer to the man I share my home with…so yes I feel totally lost and empty now my baby’s are gone…yest blessed that I could walk them at the time before MS took hold of me, well all apart from our most recent loss…
Jackie..
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Before PPMS ( 3 years ago ) I was walking two or three dogs without a care in the world that one day my ” normal ” walking would come to an end…Sadly we have one now senior aged dog left but whilst I am still pushing myself to remain on my set of feet and legs ( time is running out ) I am not able to do even the odd short walk, well maybe on a good day but I have to remember that wherever I walk to I must get myself back home and indoors, which is easier said than done…And to make matters worse, where we are now living is on a downward slope…that said with the help of my ” trusted ” rollator, and its brakes, I find it easier getting back up than it is getting down…My three dogs that have now departed were my life…our last loss was just 17 months ago..
Jackie…
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What I am missing the most is walking the dog…It only seemed a few years ago I was walking three of my dogs with not a care in the world…I feel alone now mostly when I see seniors on the tv who are going about their daily lives, such as visiting gardens, stately homes, craft fairs…It really hits home when I see older than myself actively out and about enjoying themselves at places I once went to and enjoyed, that I now cant do on my own pair of feet and legs…We take so much for granted, that is until we lose it…
Jackie