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MS cognitive fog is one of the most challenging symptoms I face
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2 Replies
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My yearly MRIS have shown no new lesions and no enhancing lesions since 2018 at least. I’ve asked my neurologist to clarify what exactly stable means since in 2018 I was driving myself to appointments and walking in under my own power and since then I’ve continued to get worse.
His explanation is that while the disease process is stable, the disability process is not and continues to progress as the white spots on my MRI eventually turn into black holes as the neurons, with no way to heal/remilinate,, die off.
That’s some real cheery stuff right there.
But I suppose all is not lost. Advances are being made everyday and I expect there will be a remyelination therapy within my lifetime. In the meantime, I will do my best to keep symptoms under control and keep an eye on my yearly MRIS.
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I wonder if my struggles with cognitive issues feel extra difficult because it often feels like my mind is the only thing I have left that is fully functional? When I was first diagnosed, I had a bad limp and I thought well this isn’t so bad. As long as my hands and eyes are unaffected, I’ll be just fine. Unfortunately, MS ended up affecting them both and I think I tell myself now that as long as it doesn’t affect my ability to think and reason then I’ll be okay.
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