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  • reflecting on life with PPMS

    Posted by joette on August 20, 2024 at 8:48 am

    I wrote my first blog last week, which is something I plan to continue doing. I hadn’t planned to start with MS, but it just spilled onto the page. It is here if anyone would like to read it – I hope it starts a thread of comments…all our similarities, and differences! Trying to keep ourselves focused on the good stuff, while managing the sadness of it all. No meds for me, with PPMS…so how I think about it is one of the ways I do my best to live well.

    https://medium.com/@coachjoette

    Benjamin Hofmeister replied 7 months ago 4 Members · 5 Replies
  • 5 Replies
  • Benjamin Hofmeister

    Member
    August 21, 2024 at 11:55 am

    Hi again joette! Congratulations on the blog. It is so therapeutic to put thoughts down in writing and even more therapeutic when someone replies and says I feel the exact same way.

    You said it all when you said that you are trying to live your best life. That is what everyone with this disease should be trying to do.

  • gotpitbull

    Member
    August 24, 2024 at 6:01 pm

    hi joette, with ms and me, I have good days, and angry days. If I wrote down what’s on my mind today, it’ll be flagged for bad words lol! Have a good one all

  • Benjamin Hofmeister

    Member
    August 25, 2024 at 4:27 pm

    Gotpitbull, I’m right there with you. People say, “you’re so upbeat!”

    I don’t generally write when I’m bitter and depressed.

  • Mike

    Member
    October 21, 2024 at 2:43 pm

    I went to your blog. I subscribed or whatever it’s called and look forward to your future posts. Congrats!

    Me too PPMS. It’s been a long slog… Initially diagnosed in 2000. I’ve tried most every treatment and then some. I have been stung by close to 3000 honeybees… Acupuncture, NAET, tapping, physical therapy, etc.

    Keep musing along…

  • Benjamin Hofmeister

    Member
    October 25, 2024 at 11:26 am

    Thanks Mike!

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