Jilly
Forum Replies Created
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oh, it seems to be working now. Good job!
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Hiya Ed, I’m here off and on. How are you doing?
I have noticed I can’t reply to some posts, which is weird. IE. are you ready for the unexpected?
And what happened to the edit your post choice, I often post before I proof read it then see a mistake, silly Jilly.
Jilly PPMS CC
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My GP says I don’t qualify.
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I have been diagnosed with cervical cancer, it’s a 5mm mass. This week I have an MRI and a PET scan and a meeting.
It’s my fault, a few years after the earthquakes I ran out of gas and stopped caring for myself. I could see no future, got PPMS now cancer. Thanks Mum.
There is one thing I am very happy about is my non existent children that I never had, will be spared from any illness. It all stops with me. Yay! Mission accomplished.
Jilly PPMS
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That’s a lot for my understanding. But I feel like I am the only one who has it.
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Hiya Ed.
I am sure there are more people with MS than we think. So, not so rare.
MS has so many different symptoms, it’s hard to even diagnose.
<span class=”ILfuVd NA6bn” lang=”en”><span class=”hgKElc”>World Multiple Sclerosis Day – <b>May 30, 2023</b>.</span></span>
Jilly PPMS
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Rock it, good one Carmen. Nice to see you on the boards.
Jilly PPMS
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good one Ed. We may as well rock it where we can.
Jilly PPMS
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Not really. As a joke sometimes I type PPMS after my name. Both my sisters have letter after their names. I can see people scratching their heads lol.
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Yes, I live in a democracy Ed. And no, my new year wasn’t very good. My sister, who thinks she knows what I should be doing ruined that day. She just can’t accept me being ok and making soft toys for the poor kids in my hood. I told her to lower her expectations of me as I will never reach them. Then told her to leave and to stay home. I am so over her. I am 60 years old for Christ sake, just let me be me.
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Jeff Bezos is who I am talking about.
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Doors are my biggest hate. I would love to have no doors at home. Steps are a pain too.
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No way. Amazon dumps truckloads of products all the time, that should have gone to schools or other poor areas. He is a rich man with no brain. He is a polluter.
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Hiya Ed. I am delighted to finally have a project. It’s taken falling out of bed 3 times in 6 months, to buying a body pillow to have the light bulb moment to make toys with felt and pillow filler.
Oh and thanks mum (rip 1985). I still have your sewing kit.
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I am making the stuffed little toys for those less fortunate. Thought when I get enough finished I will give them to Women’s Refuge or give them to the neighborhood chemist to give them to the little kids that look like they could used a soft stuffed toy. That’s my plan, I have plenty of felt but need more stuffing, so that’s on order. And I have found online great patterns to use.
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I turned 60 a couple of months ago and I have started making felt soft toys. I haven’t hand sewn for 35 years, except for replacing missing buttons. It’s been fun, but my stitches need some work so I am just making small toys at this stage.
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Hiya Ed.
When I cry I know why.
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Thanks Kevin
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I am 62 with 12 years of PPMS and I can only search back to my aunts, but as far as I know, there was no MS in my family. I joke about blaming my dads faulty sperm for my MS, and only 7 months ago I was diagnosed with cervical cancer and I joked about blaming my mother for that as she died from breast cancer. But then just a few months ago I had a blood test and I am pre-diabetic. I have to put my hand up for that one as I have fueled my body with sugar for ever. So, no more ice-cream for me, no more lollies for me and no more chocolate either.
On a more serious note. I believe we inherit our past lineage trumas, dating way back to the beginning. Never in a million years did I expect to get all my illnesses. The PPMS is the one that has changed my life the most, in a negative way, I have let MS take my life. I got through the cancer treatment very well, in fact I was on a natural high because I had something to get up for, for 7 weeks of treatment. As for being cancer free, I will know in August 2024.
Heart attacks and cancer are in my family, that’s all I know.
I am so glad I never had children, it stops with me.
Jilly PPMSCCPD
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I talk about my bowel to people close to me, which is just a small number. Can I talk here about it? Yeah why not lol.
Sometimes I don’t go for 4 days, then all hell breaks out. And then repeats. MS affects my bladder as well, but I have pills for that, Oxybutynin which helps with the sense of urgency. They really help as a cannot move fast.
It just gets better and better doesn’t it.
Jilly PPMS CC
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Hi Mike, sorry to hear you got shingles, that awful to get I hear. My mother got shingles after breast cancer back in the 1980’s, it just gets better and better doesn’t it.
Jilly PPMS CC
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I meant to say older women may have cervical cancer. Go to doctor fast.
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Hi Benjamin. Sorry for the delay. I have been in and out of hospital with all sorts of scans. I have stage 2 cancer which is fixable. But it comes with risks. My PPMS may get worse. I am really scared about that. I don’t want my MS to get worse, it’s hard enough now. I suppose it’s my destiny, like all the other bullshit in my past. I really am in the ‘now moment’ facing the deep end very soon. I try my best not to dwell on it and for the most part I do ok. My first treatment is 22 January, then it’s everyday (Mon-Fri) for 6 weeks. that’s all I know right now.
Tip for older women. If you start bleeding from your vagina you have cancer ok and get to your doctor fast.
Jilly PPMS CC
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Hi Benjamin. I was surprised mostly, didn’t see that coming. My roommate was diagnosed with blood cancer 4 months ago as well. We are a right pair. I am in two minds whether to accept treatment or not. I have been waiting for something that will kill me. I am not fussed on this planet anymore, rather tired of all the awful things going on.
Jilly PPMSC