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  • Pharmac funding treatment for PPMS in New Zealand

    Posted by jilly on September 6, 2023 at 12:03 am

    I just heard this on the news last night. I couldn’t believe my ears. I have made an appointment with my GP, end of September to talk more about this new treatment called Ocrelizumab. I hope I qualify.🤸‍♀️

    Jilly PPMS

    jilly replied 1 day, 21 hours ago 3 Members · 3 Replies
  • 3 Replies
  • ed-tobias

    September 10, 2023 at 4:30 pm

    Hi Jilly – That’s great news! I know of a lot of people who have done very well on Ocrevus (the brand name in the States). I hope that it’s the right DMT for you. Ed

  • mike-purcell

    November 23, 2023 at 2:09 pm

    I’ve had this treatment. The protocol is they give you first 2 half doses. Then you received a full dose. Each one is an infusion which takes four or five hours. I tolerated it well. The only side effect was a scalp itchiness which they gave me something to relieve . It worked immediately to relieve the itching. I really had no other side effects. In total I had five or six infusion treatments. I stopped it really because my next treatment was scheduled during the start of the pandemic.

    One other thing that I cannot say one way or another was after my third treatment (approximately) I came down with the shingles. I can answer any specific questions you may have I will be happy to. Good luck. By the way, my neurologist immediately described the O

  • jilly

    November 28, 2023 at 4:18 pm

    My GP says I don’t qualify.