- This topic has 8 replies, 4 voices, and was last updated 3 years, 2 months ago by
Debi Wilson.
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April 15, 2019 at 11:17 am #17216
Debi Wilson
MemberHaving MS can involve a lot of thought. I always have to be aware of walking so I don’t fall, plan ahead before going places, and manage pain. Those are just a few of my concerns, I am always thinking about MS.
Do you feel MS sometimes consumes your life? Do you always have MS on your mind?
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April 15, 2019 at 5:25 pm #17222
Anonymous
InactiveYes. It has changed my life so much I never leave the house, only go out to doctors apppointments. but aside from the MS, 4 years ago I was at my darkest time and tried to end my life, so I have been trying to come back to a new normal. MS has affected me greatly and I feel I will never get over it. The boredom is the worst. It’s not a life.
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April 16, 2019 at 12:23 pm #17234
MODY
ParticipantJilleen
all what we take now is just (analgesic) ,so,the best way for MS patient to act is choosing the appropriate med. and wait for some years till he/she finds a cure.
I left home to U.K.,China,Germany searching for a cure and I found nothing yet. Yes some herps/dietary supplements can help a little but the diseases still exist.
lets hope.
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April 17, 2019 at 1:37 pm #17265
Nancy Eisener
ParticipantIn the last several years my MS has certainly worsened. Constant spinal pain, all of my spine, but especially cervical and lumbar. I cannot concentrate well at all anymore I spend my life confined at home, walking in circles, sitting uncomfortably or walking in the same state. I rarely take my small dog out myself. Yes, it certainly can consume one’s life. I try to read, bake ( at a low table, while seated on the floor cushion–I keep trying to be positive and to associate with positive folks online. It helps!
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April 15, 2019 at 5:37 pm #17223
Debi Wilson
MemberI’m sorry for what you have been through, Jilly. I know MS can consume us and bring us down sometimes. During those times I really try to focus on the positive in my life.
When I think of you, I think of how talented you are and what a great sense of humor you have.
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April 16, 2019 at 12:10 pm #17233
MODY
Participantnot sometimes but ALWAYS
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April 16, 2019 at 12:29 pm #17235
Debi Wilson
MemberI agree Mody, some people don’t feel that way. So I said sometimes. ?
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April 16, 2019 at 5:44 pm #17242
Anonymous
InactiveMody well hello again, nice to see you on the boards/pages lol.
Debi, thanks. Most people have dark times, I just mention it more than most lol. And thanks for the compliment.
I love that my humour comes through in text, that’s really cool.
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April 16, 2019 at 7:49 pm #17246
Debi Wilson
MemberIt does Jilly! Great sense of humor is one of the first things I think of when I think of you!
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