-
Ocrevus injection instead of infusion
The FDA approved a version of Ocrevus administered via subcutaneous injection rather than IV infusion.
It would still be twice a year and would take 15 minutes max. I intend to ask my doctor about this. I don’t mind the infusion and I’m on the faster delivery rate, but this seems much more convenient.
What do you think? If you are on Ocrevus now, would you consider this? If you are on another DMT, would this make you consider switching?
-
5 Replies
-
So, if I understand correctly… This is a SubQ injection. How many? Can you do them yourself? Twice a year?
I was doing the Ocrevus infusions but stopped early 2020 mainly because of Covid. My experience (only) with Ocrevus was:
1) I was waiting for an AHA moment… hoping for… Which never happened. I experienced no improvement. (PPMS – 25+ years). With all of the uncertainty that Covid brought I stopped. I understand that I was not to see/expect a noticeable improvement.
2) Maybe a possible side of fact which I did experience was the shingles.
3) I don’t suspect 1 had anything to do with the other but over the last 5 to 10 years I’ve lost much of the ability use my hands and fingers.
I would consider Ocrevus injections after discussing same with my neurologist. Anyone else doing the injections?
-
To the best of my understanding, it is still twice a year but the sub Q injections only take about 15 minutes compared to the three to four hours of the infusion. I’m going to ask my neurologist more about it next month and maybe I can switch…. if it has the same efficacy of course.
I was on two different dmts before ocrevus and the diagnosis of progressive MS. On an MRI I don’t have any new lesions or enhancing lesions but I continue to decline. It’s been explained to me that the disease activity has stopped, but with no way to remyelinate, the disability continues to progress as demyelinated areas of my brain and spinal cord eventually die off. I know that’s not very cheery, but that’s life.. or at least life with MS.
-
Regarding Ocrevus… Did you see?… I recently saw study results on Ocrevus specific to PPMS and that it was proven not to do much of anything (DMT) related. It didn’t seem to do much in the way of slowing progression.
-
I did see that Mike. It’s a little depressing since Ocrevus is the only approved treatment for PPMS. I don’t show any new lesions on my yearly MRIs, but my disability continues to increase. I’ll continue taking Ocrevus, but my focus is on symptom control.
-
I’m not too high on DMT’s. There something fundamentally incorrect to me about slowing down your immune system. Personally I am waiting for remylination and stem cell therapies.
-
Log in to reply.