Forum Replies Created
December 5, 2020 at 8:36 am #20411
very exciting! how long does it usually take for things that are successful for mice to make their way to human trials, and then how long does it take after that before people like us can get it?
November 10, 2020 at 9:29 pm #20349
I definitely notice this while playing video games with my son. I don’t doubt it one bit.
November 10, 2020 at 9:26 pm #20348
I have been since February. It drives me nuts that people around this area don’t take the virus seriously and won’t wear masks. We have missed celebrating so many monumental occasions in the past year: My son’s 18th Birthday; My 20th wedding anniversary; My son’s high school graduation; My daughter’s 16th Birthday. It has been rough.
August 11, 2020 at 8:01 am #19967
As i am fairly new to this world, my first bout of TN landed me in the ER and led to my MS diagnosis. Does having one always lead to another attack? Mine was a year and a half ago.
July 14, 2020 at 9:49 am #19900
FWIW, I had a similar conversation and concern with my doctor. The way he stated it to me was this:
1) we don’t know how Coronavirus will affect you. You may be asymptomatic, or may have lesser symptoms. We just don’t know.
2) we don’t know how the drug will affect you infected with the virus.
3) we DO know you have MS, so not treating it means you run a high risk of getting worse.
So, I took the risk and went ahead with the infusions. I’m curious to hear how Adam is doing now and what decision you made.
July 14, 2020 at 9:40 am #19899
That would be one silver lining in all of this.
July 14, 2020 at 9:38 am #19898
I was on Tecfidera for roughly 6 months last year. It was my first DMT. While I didn’t have any side effects, and I felt fairly normal, I had several new lesions and a flare up earlier this spring.
My Neurologist advised to switch to Ocrevus, even with this Pandemic in full-swing, and I just finished the second-half of the first dose two weeks ago.
Cognition has also been a problem for me over the last few months, but I seem to be able to think and able to speak more clearly already.
I am also semi practicing the Wahl’s Protocol, where I don’t eat Wheat, avoid dairy and eggs, and eat a lot of sulfur. I take about 6K iu of Vitamin D a day.
So I don’t know if it’s the Ocrevus, if it’s the diet, if it’s just simply trying not to get too stressed out about things or what, but I feel like I am on the right track. I still don’t feel great, so time will tell if the Ocrevus really is helping or at least slowing the disease.
I hope this helps with your decision. Good luck to you!