Log In or Register to Join The Conversation!
Viewing 2 reply threads
  • Author
    Posts
    • #19510
      Adam
      Participant

      My son Adam is scheduled for Ocrevus treatment at Stanford Hospital April 3 & 17. I’m not certain I should take him out in public for his treatment due to the Coronavirus. I’m feeling uncomfortable not knowing if we should go or not.  Adam is wheelchair bound. Please advise.

       

    • #19529
      Jennifer Powell
      Moderator

      Hello,

      I can truly empathize with how difficult this decision is. I have Secondary Progressive MS and am on a similar infusion. I have been advised not to proceed with treatment due to Coronavirus. I want to emphasize that each individual’s MS is different. My physician made a decision based on my case.

      I see Adam is scheduled two weeks apart. That tells me this is his first infusion of Ocrevus. I suggest speaking with his neurologist to discuss your concerns. S/he can best guide you. as to what would be in Adam’s best interest.

      Thank you so much for reaching out. We wish both you and Adam the very best.

      Kindly,

      Jenn

    • #19530
      Ed Tobias
      Keymaster

      Adding to what Jenn has written, the MS International Federation has issued guidelines regarding treatment with the various disease-modifying medications in the current situation. Continuing treatment really depends on the way in which the medication effects the immune system. Here’s part of what the Federation’s website says:

      People with MS who are currently taking alemtuzumab, cladribine, ocrelizumab, rituximab, fingolimod, dimethyl fumarate, teriflunomide or siponimod and are living in a community with a COVID-19 outbreak should isolate as much as possible to reduce their risk of infection.

      Ocrelizumab is the generic name for Ocrevus. Here’s a link to the full web page: https://www.msif.org/news/2020/02/10/the-coronavirus-and-ms-what-you-need-to-know/

      Hope this helps,

      Ed

Viewing 2 reply threads
  • You must be logged in to reply to this topic.
Copyright © 2017-2020 All rights reserved.

©2020 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending
or

Log in with your credentials

or    

Forgot your details?

or

Create Account