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Are you on the high dose biotin protocol? Are you seeing good results?
Are you on the high dose biotin protocols? How long have you been on it and are you seeing good results ?
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3 Replies
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I’m not on it, but a survey of the FB Biotin for PPMS group seems to show an even mix of “helped with bladder issues”, “haven’t noticed a difference”, and “had side effects and got off that stuff”.
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That’s interesting, I did see some improvement the first 6 months I was on the protocol. The second 6 months showed no improvement for me.
I hope we can generate more feedback on this topic. Especially, with the new data that claims high dose biotin  produces negative results. Thank-you for the suggestion for this topic,  Steve!
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I look forward to reading others’ opinions on this. I have been on high dose biotin for about 2 years now and I’m pretty much on auto-pilot for taking the stuff. Am I better? Probably, but I think it has somewhat levelled out. Can’t say I’m seeing continued improvement but neither can I say I have experienced a decline. Guess will stick with it for time being.
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