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    • #13928
      Debi Wilson
      Member

      Are you on the high dose biotin protocols? How long have you been on it and are you seeing good results ?

    • #13930
      Steve Adams
      Participant

      I’m not on it, but a survey of the FB Biotin for PPMS group seems to show an even mix of “helped with bladder issues”, “haven’t noticed a difference”, and “had side effects and got off that stuff”.

      • This reply was modified 3 years, 3 months ago by Steve Adams.
    • #13932
      Debi Wilson
      Member

      That’s interesting, I did see some improvement the first 6 months I was on the protocol. The second 6 months showed no improvement for me.

      I hope we can generate more feedback on this topic. Especially, with the new data that claims high dose biotin  produces negative results. Thank-you for the suggestion for this topic,  Steve!

    • #16079
      Cyndi B
      Participant

      I look forward to reading others’ opinions on this.  I have been on high dose biotin for about 2 years now and I’m pretty much on auto-pilot for taking the stuff.  Am I better?  Probably, but I think it has somewhat  levelled out.  Can’t say I’m seeing continued improvement but neither can I say I have experienced a decline.  Guess will stick with it for time being.

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