Multiple Sclerosis News Today Forums Forums Living With MS Have you ever experienced unexplained sensations?

  • Have you ever experienced unexplained sensations?

    Posted by debi-wilson on February 18, 2019 at 12:39 pm

    My column next week will be on the  neurological nerve pain and the various unexplained sensations of MS.

    Do you ever experience tingling, burning or numbing? What are some other sensations that you have experienced?

    debi-wilson replied 5 years, 1 month ago 2 Members · 4 Replies
  • 4 Replies
  • kacey-llano

    Member
    February 19, 2019 at 12:30 pm

    I have had burning pain that persisted along nerve pathways in my arms and legs.  Very difficult to deal with. I was prescribed Gabapentin, and the drug worked for the pain, but left me feeling a little goofy.  I am very glad this has not been a problem for the past few years.

  • debi-wilson

    Member
    February 19, 2019 at 3:43 pm

    Hi Kacey,

    I have the same, burning feet and it’s now moving to my legs. It’s very uncomfortable! I will ask my doctor about the drug that you take. Are there any side effects?

    • kacey-llano

      Member
      February 19, 2019 at 10:27 pm

      Debi Wilson, I hope I am replying in the right place; I am not so familiar with forums.  I took Gabapentin, generic for Neurontin quite some time ago, it would have been in 2003 or 2004.  I used it for less than a year. At the time, I was attending college classes and it did make course work more difficult, as I’d said, it made me feel “goofy,” and not as sharp-minded as I needed to be.  It did relieve the pain, and at that time, the pain was so bad it also impair my ability to function day-to-day.  I can tell you that the pain subsided, and I have not had persistent nerve pain again since that time (fingers crossed, knocking on wood).

      There may be better solutions for nerve pain now; I was taking Gabapentin some 15 or 16 years ago.  Your neurologist may have other solutions.  Because of the side effect — it made me a little silly and not so “sharp,” I would not consider it unless the pain was severe (as it was at that time).

      I hope your discomfort does not persevere.

       

  • debi-wilson

    Member
    February 20, 2019 at 9:07 am

    Good advice Kacey, I appreciate it! I am a lightweight when it comes to meds, so I have been avoiding them. But, I have had this burning for quite a while and it seems to be getting worse.  I definitely will talk to my neurologist! Thanks again!

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