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How would you explain MS to someone that doesn’t know what it is?
MS can be difficult to understand, how would you explain it ? Do you think you could describe how it feels to someone else?
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6 Replies
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You cant, I have tried explaining that over and over again to the man I live with, doubt it will ever get the true message through to him. Nor to anyone else who doesn’t have it. Not even the people who dont have it and are somebody’s MS carer. There is a difference between seeing daily – being with someone who suffers with MS and actually the person who is suffering with the MS…MS is anyone’s worst nightmare come true in my opinion.
Jackie
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Having PPMS it keeps changing, even I don’t know what’s going to happen, but when a change happens my roomate hears about it. Good and bad things have happened but the bad of course is I will never not have MS. My roomate is very aware of what I face everyday, and he is the only one. My own sister called in one day and said as I wheeled my way back to the lounge, “your walking well with that thing.” I thought, yeah right! the bloody thing never leaves me. I said “Not really, this is about all I can do, I never leave the house sis!” Most people wouldn’t have a clue as they float in and out of your life so fast they can’t imagine what it’s like because they simply don’t see the everyday struggles. My two older sisters got together this weekend and had a great time I was told. Envy enters my life now and that sucks, it’s still hump day here. when will I get over hump day I ask myself. (scratches head). I must admit, I am really tired of having to get over things, I have been doing that my whole life.
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Jackie and Jilly,
You are both correct, MS is almost impossible to explain. People just can’t understand what they haven’t experienced.
Jilly, I know what you mean about missing events, activities and the fun due to MS. I just had to miss seeing my siblings due to MS symptoms.
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This is our new life now, it has changed alot from what we were used to.
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I will second that ” This is our new life now, it has changed a lot from what we were used to.”
Our body now governs us not the other way around, it is MS who is in control, not us, and I have strived most of my life to always be in control, now I have lost it.
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True, we just have to go with it.
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