Jacqueline
Forum Replies Created
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I very much doubt it. Before any cure can be found, they need to find how and why it was here in the first place, they need to tackle that one first.
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I often ask myself that same question, as of yet, I dont hear no answers. Maybe my MS is giving me some form of a ” social life ” strange to say that really as I have more of a social life now than I had before my MS. Some of course are MS related, others are senior ( as in senior age ) club, groups. They always say, ” positives come out of negatives.”
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Quoting because I agree with your statement, our immune system gets low when we are out of sorts-not on par, it senses when we are low. Ha ha, we have to stay one step ahead at all times.
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Debi, it is hard knowing what best to take. I have books from Terry Wahl, Swank, Jelinek and Judy Graham. Judy Grahams approach is dealing with her MS ” naturally ” which would be my approach but on reading much of it her lists of vitamins-supplements, minerals and trace elements is too large for my liking. I just could not imaging the body needing so many on a daily basis, if we are eating the right foods our body would be getting overdosed.
Judy Grahams book does make an interesting read, she touches on many subjects, and is very knowledgeable on ways of treating hers and our MS, naturally.
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Quoting : ” it’s like our defenses are even lower than normal during those times.” Debi, its time we start fighting back.
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Well i had a birthday last week, and i felt happy enough, we went to see a theatre show even though my MS top of bad leg started manifesting itself, coming alive, re, electrical jolts-contractions at varying strengths. I do believe though that when our mood is low, we are feeling low, all manner of bad health is just awaiting its chance to come out and show itself so their probably is some truth in what you say. How many times when we are run down do we come down with a cold a few days later? its our immune system.
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Thank you Debi, now I will stay on track with your question. lol.
I was taking Vitamin D3, Flax seed, Cod Liver oil, although not all three at the time, or rather I gave them a try. I should really go back to taking them again.
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No, think I have gone past that stage, although I do often have the d*v*l in me, guess its my kindof humour. lol
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Not sure, this is a tad like which came first, the chicken or the egg. I do know my mood changes with my worsening symptoms, even if they are short lived. To be truthful Debi, I believe if its going to happen it will happen, whatever our mood.
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Still having them and we are soon to be going out to our afternoon church board games social…of course now its mid day they are at their strongest, a cross between the top – front of thigh muscle contraction and electric shock with no warnings of strength. Oh well, guess our handful of games companions are going to hear some unusual hollers from me.
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Ha ha Jilly, that’s one less item of clothing we need to fork out our money on.
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Oh Jilli, you dont need to describe it to me. Like you, for the last week or two my top right leg has come back to life, you know what I mean, electricity type charges – volts – with no warnings. Oh the joys of our ” invisible ” MS, NOT..
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I too dont wear a bra anymore, ( cant be doing with the fiddly hooks, ) stopped wearing those after I was diagnosed, I now prefer wool and silk vests, although I do own a couple of ” Sloggi ” all one piece pull-on bras.
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Jilly, I think the whole world was…no country will ever tolerate terrorism.
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Yes the MS stomach bloat, where we always look as if we are pregnant. Do the MS men suffer this too?
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Debi, I have often thought of this, well recently I have been…I stopped wearing skirts with fixed waist band, side buttons and side-back zips, as too fiddly. I have exchange these now for pull-on elastic waisted jersey skirts but, not sure I have been doing myself any favours as the elastic around my waist might be hindering my MS rather than helping, you make a good point.
Jackie.
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Yes the Duracell Energiser Bunny, do you remember that tv advert? I want to be just like her.
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Meant to have added, these electric shocks come at the place where I was previously also diagnosed with Meralgia Paresthetica, although I know ( my own gut feeling ) that this was-is an incorrect diagnoses. I am also getting a mild shock as I walk and pressure is placed on my leg, when it feels like the bone is rolling over a bone.
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Jilli, all signed I hope, ( the photos. )
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Yes another day, still having these electric shocks, although during the day, never whilst in bed, thank the Lord…I am sure they are just testing me that I am still alive…
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Debi, ha ha, that sleepy dog looks just like our dog, same colour too, only our dog has more energy than me- more get up an go, well apart from my trips back and forth to the loo.
Jackie.
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Oh yes, and they first started to show themselves just over a week ago, they chose my birthday of course. So much for a birthday present, I bet they thought, hey, what shall we give her, I know, lets give her electrical activity.
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Every day for me is a Primary progressive MS day, not sure why we have a special day for it once a year, unless it is to widen peoples experience of just what we live with on a day to day basis, our disease…but do non MS’ers really care?…
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Oh yes, I remember my walking changes probably 1 year – 18 months before diagnoses when me and my other half went out for the day to a place called Luton Hoo, a Stately Home ( UK ) to visit their garden grounds. I so wanted to use my ” hiking ” stick but thought it I would embarrass my other half , so I never took it but, oh how I wish that I had…I was ok walking from the grounds car park and walking the length of the grounds towards the Mansion house, path and uneven grass, then came unstuck when walking towards the fountain, came rather dizzy, then walking down a long sloping pathway, I got half way, then I just could not move, he couldn’t understand why, and he kept pressurising me that it was flat ground, and to walk further. Well flat ground it may have been but, I couldn’t move, I was stuck on grass, not knowing which way to turn, left otr right. How I got back on the path, back to the car was anyone’s guess, anyway after that, I used my stick, I didn’t care anymore about embarrassment, to him or myself..Of course now I have since progressed to a rollator…