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    • #21398
      John Connor
      Keymaster

      This is an interesting study – especially for me.

      I was successfully on Ocrevus and, then was wrenched of it. Not overnight but within one hour of taking it! For exactly for this PML infection reason.

      I have extremely aggressive MS & it was the first DMT – Disease Modifying Therapy – that I ever felt was actually helping me. It was holding me in RRMS. 10 months after my last dose I had 2 relapses within a month! Moved into SPMS.

      Anyone been yanked off a therapy like this/

    • #21399
      Ed Tobias
      Keymaster

      John –

      I’ve been following the Ocrevus/PML concern for a few years and, out of the tens of thousands of people who have been treated with it only about a dozen PML cases have been reported. And I’ve only come across one who had no DMT before Ocrevus. Here’s what I wrote about that.

      I think whoever yanked you off Ocrevus should put you right back on it. (Just my personal opinion. As you know, I’m not a doc.) And you can tell him or her I said so!!

      Ed

       

    • #21401
      John Connor
      Keymaster

      Ta Ed

      That’s a lot of ammunition for a British bloke.

      I’ll give it a shot!

      JC x

    • #21419
      John Connor
      Keymaster

      Ed – have just e’d my Neurologist about this. x

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