This topic contains 13 replies, has 4 voices, and was last updated by  Debi Wilson 10 months, 3 weeks ago.

  • Author
    Posts
  • #15366

    Debi Wilson
    Member

    Does MS and it’s symptoms keep you from appointments or attending events? How does that make you feel? How often does it happen?

  • #15378

    Jacqueline
    Participant

    Debi…

    …it hasn’t done so far but then I dont go to many places nor have many appointments…It did on occasion stop me from attending one or two of my once a month MS social evening gatherings, but that’s to be expected, not only by me but also some of the other MS members…

    If on the other hand I am thinking on going somewhere particularly someplace I am not familiar with, I have to check this place- building has a loo, if not, I wont go…This happened over Christmas, I had to choose wisely when attending Church Christmas Carols services…Not all churches have an inside or even an outside loo, and the ones that do, have their loo in the church hall across the road or lane usually in the car park area…

    • This reply was modified 10 months, 3 weeks ago by  Jacqueline.
  • #15387

    Debi Wilson
    Member

    I can relate to checking out places ahead of time,it is a must!  I once went to a restaurant where the door frames going into the bathroom were so narrow my walker wouldn’t fit through.  It was totally not handicapped friendly, I felt like I was in a child’s playhouse.

  • #15399

    Jacqueline
    Participant

    Debi…

    …that’s bad…I guess as far as this restaurant was concerned, they see it that the handicapped dont eat, or if they do, they – we dont go out to eat…

  • #15400

    Debi Wilson
    Member

    Yes, it was bad. Sometimes, people just don’t have a clue. If they haven’t been around people with disabilities they don’t understand.

  • #15405

    Anonymous

    MS has taken away my confidence and made me fat.  I was always skinny but not now.  I go nowhere.  Basically it’s because of my bowel and bladder issues, I get no warning when I need to go.   I have taken myself out of the real world, I have no desire to go out.  The interent is my world now,  thank god for that.  So lucky to have the internet for entertainment.  As for plans, well I don’t make any to cancel them lol.

  • #15407

    Debi Wilson
    Member

    I’m sorry Jilly.  But I understand,  I don’t go many places either.  I am excited to go and have a reunion with my brother and sister next month. But, it will be a long drive and they both have stairs at their houses. I can think of a million things that can go wrong, and I think of backing out daily. But, if I plan ahead , eat the correct foods (  I have food intolerances), drink water at the correct intervals , I think I will be ok! lol

    It sounds ridiculous but I have to do a lot of planning to go somewhere .  And seeing them is important to me so I’m going to go for it! Dang this MS!! 🙂

  • #15421

    MODY
    Participant

    Hi Debi

    yes, I  couldn’t leave home so many times due to bladder problems that prevented me of leaving home.

    Regards

    • #15466

      Anonymous

      Hey Debi.  What I have come to know is I will not be told by anyone what to do.  That may be viewed as detrimental  by others, but it’s my choice all the way now.  I don’t exercise, I eat what I like.  My alter ego has turned into an obstinate second personality lol, finally.  It makes me laugh when I joke about myself, good stuff.

      It is a big deal adjusting to having this illness, it’s taken me since 2012 till now and I am still adapting.  big process and it sucks lol.

    • #15467

      Anonymous

      Mody, my doctor has precribed me with Oxybutyin for my bladder and works a treat, takes away the urgency, and has also helped by bowel too.  What a relief is all I can say it’s amazing.

      • #15475

        MODY
        Participant

        Thank you for good news Jilleen. After using MMS1 recently, bladder & bowel are much better now. Also I felt my left foot joint became much stronger.
        Regards

        • This reply was modified 10 months, 3 weeks ago by  MODY.
  • #15443

    Debi Wilson
    Member

    Sorry to hear that MODY,  MS is terrible!!

  • #15477

    MODY
    Participant

    Yes Debi it is, but I’m doing my best to live while there’s no cure yet

    thanks 🙏

  • #15532

    Debi Wilson
    Member

    Yes, It’s all we can do, MODY. 🙂

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