Multiple Sclerosis News Today Forums Forums Trials and Research First SPMS Patient Dosed With Foralumab Nasal Spray

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  • CG

    Member
    June 15, 2021 at 1:29 pm

    I’m new on posting….I’ve had MS for 20 years, this seems exciting but far from reality for most.  I am a retired Physician Assistant, but still keeps up with the literature. I have cervical cord lesions and deal with 24/7 neuropathic pain and autonomic dysfunction.  This affects temperature fluctuations , GI , Urinary,but most awful pain affecting both feet.  Have not walked in over a year.  Sunlight hitting my feet brings on terrible swelling and redness.I can’t stand by fridge too cold.  A makeup mirror makes me too hot.   Does anyone else have this?

  • ed-tobias

    Member
    June 22, 2021 at 4:23 pm

    Hi CG,

    For someone new to posting you’ve done it quite well.

    I’m sorry about all of your problems, especially the pain. Are you using any medications to try to handle your symptoms? Are you using any DMTs to try to try to reduce our lesions? What about exercise or P.T.?

    I guess after twenty years you’ve probably tried them all but I gotta ask. :-).

     

    Ed

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