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    • #20908
      John Connor


      There is no effective treatment for SPMS available. Having just joined this merry throng at least this is something trialing in human beings. As opposed to  something that works on mice that never makes it to us.

      Any SPMS advice for a newbie?

    • #21160

      I’m new on posting….I’ve had MS for 20 years, this seems exciting but far from reality for most.  I am a retired Physician Assistant, but still keeps up with the literature. I have cervical cord lesions and deal with 24/7 neuropathic pain and autonomic dysfunction.  This affects temperature fluctuations , GI , Urinary,but most awful pain affecting both feet.  Have not walked in over a year.  Sunlight hitting my feet brings on terrible swelling and redness.I can’t stand by fridge too cold.  A makeup mirror makes me too hot.   Does anyone else have this?

    • #21168
      Ed Tobias

      Hi CG,

      For someone new to posting you’ve done it quite well.

      I’m sorry about all of your problems, especially the pain. Are you using any medications to try to handle your symptoms? Are you using any DMTs to try to try to reduce our lesions? What about exercise or P.T.?

      I guess after twenty years you’ve probably tried them all but I gotta ask. :-).



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