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Have you ever experienced heart palpitations, were they MS related
Have you experienced heart palpitations, did you feel they were MS related? Or did you discover they stemmed from another issue?
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11 Replies
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I have them often, nothing is found but MS doctor says they’re not MS. Been a few times with this complaint and I have been told by a few doctors at mount Sinai that it is “unheard of” to have an MS lesion cause heart palpitations. Idk to the extent of that though.
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Hi Jordan,
I have PPMS, I experience heart palpitations also. They started last December after my husband passed away. I have had them a few times since then. My doctor feels they are not MS related but, instead due to anxiety. I had some heart tests and they came out fine. What about you do you feel yours could be stress or anxiety related? How often do you have them? -
Hi Debi,
I always attributed mine to stress and lack of sleep. I definitely have them more often and consistent when I didn’t sleep well. I’ve had a stressful two years so I also assumed that was the cause but they’re very episodic. It will happen consistently for a few days then go away, recently (about a month ago) it came back and was accompanied by an increase of dizziness. MRI was stable so not really sure. It lasted for about a month.
I have been doing more and more of my own research the past two years though once I got a positive blood test result of ebstein barr. I never knew I had it in the first place, but from what I found was ebstein barr with autoimmune conditions or immunocompromised people can cause a wide range of symptoms: increased heart rate and heart palpitations being two of them.
Have you ever been tested for ebstein barr or have a known past occurrence of it?
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I had mononucleosis (EBV) when I was 14. I have never been tested for EBV in all these years, though. What do you do for your palpitations when you have them?
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I also had mono as a teen. Have palpitations occasionally – I assume stress-related. I have taken Atenolol for it, with good results. I’ve never been tested for EBV – imagine it would be positive.
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Hi Ruth,
I take a little extra atenolol when I have palpitations, also. My Doctor okay’d it. Anxiety is hard to get away from when you have MS, since our nerves are so affected. -
I have and never considered they would be MS related – and docs never said a word. Interesting – seeing doc this month and I’ll add to my list of questions.
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Please, share what he has to say with us, Micki!
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Debi, I can say that I was put on a med and, of course, I can’t remember the name – DANG MS BRAIN for energy. It over stimulated me and I actually had panic attacks. Realized what was going on and threw them away. It might have been nuvigil but not sure. Panic attacks and chest pressure.
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Oh no, Micki! Isn’t that frustrating when medicines can make symptoms worse or create new issues! I’m glad you got rid of those!
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I have Afib. After MRIs, Stress tests, etc, the cardiologist concluded there is no underlying physical issue with my heart. I am being treated for Afib but the meds don’t always work. I also have shallow breathing and a slow breathing rate, so my Ox Sat is also sometimes low. Neurologists say this is not from my MS 🤷🏻♀️
The Afib is sporadic. I told doctors over the years I felt like something was off with my heart. My new cardiologist believed me and gave me a monitor for a longer period of time and then discovered it. Stress can trigger it but it is not anxiety or a panic attack.
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