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    • #20493
      Ed Tobias
      Participant

        I’ve noticed a lot of chatter in Facebook groups about switching disease-modifying treatments. A lot of it has to do with moving from Tysabri to Ocrevus, but it’s not limited to that.

        Have you switched DMTs or have you considered it? What’s been your experience?

      • #20499
        John Connor
        Keymaster

          Not so much switched as stopped. Was injecting Rebif then one day it just stopped me from walking! So didn’t take it & could walk again. Eventually put on Copaxone & same thing happened!

          I figured I might as well walk whilst I still could!

          Eventually put on Fingolimod which I loved.

        • #20910
          Mina Kerr
          Participant

            Considering switching to Aubagio. Have been on Rebif since 2005.

            I had absolutely no side effects with Rebif, but am tired of an injection 3x a week.

            What have been your side effects with Aubagio??

          • #20913
            Ed Tobias
            Participant

              Hi Mina,

              I was treated with Aubagio for a couple of years. I had no side effects, though I’ve heard complaints from some people who have lost some hair.

              I understand how you feel about Copaxone. Avonex was my first DMT – 1996 to 2008 – and my needle fatigue became so bad that I had to ask my wife to jab me. Finally, I started skipping doses. I knew I had to change.

              Ed

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