-
I need your help, support and opinion. Life with two chronic diseases.
hi dear friends i hope you are all keeping up with the crazy realities we are experiencing and hope you all had a blessed Easter.
I am writing from Cyprus. I used to be a member at the old website and used to write my daily experiences with ms quite often. I am 43 and single. I was diagnosed with ms in 1997. I then did nothing else but fighting. I ve tried all therapies (interferons, cell cept, rebif, immunoglobulins, mitoxandrone, experimental treatments in other countries, lots of steroids e.t.c. I was quite young and the disease came strong on me. Had two strokes, and dozens of relapses over the years (vertigo/poor balance/numbness/optic neuritis/ bladder issues/ speech issues etc. I needed to have hysterectomy at 37 and thought my quality of life would change since i had a lot of issues with my period and hormones. In 2008 i took tysabri for the me and though i began as jc positive my index was low and went of taking the treatment till today. it has been a very long journey but this drug eventually gave me my life back -at least some-. In November 2020, i was diagnosed with breast cancer and had mastectomy. my jcc virus index rose from 0,24 to 1,50.
Ms got really upset for losing the star role. and tysabri got really agitated with all the medicine i take for cancer. I am 43 and have spent all my life with doctors in hospitals. do you think tysabri caused the beast cancer cause i dont want to give up on it. And if i do, what do i do next? how do i avoid the rebound effect and carry on without treatment in summertime? i really started losing my mind going from one clinic to another all alone cause of covid and feel my head will eventually explode.
i decided to take may off ms. and take the index test again and if the results get better have a fusion in July.
I am really sorry for all this long bitter story. I ve never stopped fighting and never will. i just read stuff and got really confused on cancer and ms. Any Advice?
God bless you all
My love
Chis
Log in to reply.