- This topic has 8 replies, 5 voices, and was last updated 3 years, 6 months ago by
Debi Wilson.
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AuthorPosts
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September 29, 2018 at 6:10 pm #13676
Debi Wilson
MemberMS can bring an abundance of symptoms into our lives. What symptom do you feel impacts your life the most? What adjustments have you made to accommodate for that symptom?
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October 5, 2018 at 8:14 am #13754
Cynthia King
ParticipantSpasticity hands down. I am lucky to have left what I have left after 25 years, but spasticity. I get Botox in my feet/ lower legs and the helps so much for walking, it’s hard to walk if your feet won’t lie flat on the ground. It’s in my back and I feel like there are invisible magnets pulling me backward, and my spine is all messedup because the muscular imbalance has pulled my bones out of alignment, and now I am trying to resolve a spastic pelvic floor, but only on my right side. Ugh.
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October 5, 2018 at 9:55 am #13755
Debi Wilson
MemberSorry to hear that Cynthia, sounds very painful and annoying! I’m glad the Botox helps some. I have leg cramps/ spasticity and it’s painful, so I can relate to some of what you’re saying. MS is not fun, that’s for sure!
Thanks for sharing what works for you. How often do receive the Botox?
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October 5, 2018 at 12:56 pm #13757
Ed Tobias
KeymasterThere are really three: spasticity, fatigue and bladder control. There are treatments for each of those but no “magic pill.” But, rather than hiding from the storm I’ve learned to dance in the rain.
Ed
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October 5, 2018 at 2:52 pm #13758
Debi Wilson
MemberThat’s a great quote, Ed!
Walking is my worst for sure, with spasticity and fatigue a close second . I agree, no magic pill.
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October 9, 2018 at 11:20 am #13782
Carla Epps
ParticipantPardon me as I learn to navigate through these forums. I would have to say spasticity coupled with lower extremity weakness have the most significant impact on my life. To address these, Intense PT has been helpful but not an overnight solution.
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October 9, 2018 at 11:35 am #13783
Debi Wilson
MemberWelcome back Carla! I relate to the symptoms you mentioned. I also like PT I feel it is very beneficial! Thanks for joining in the discussions, I hope you find some other topics you can comment on.
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October 29, 2018 at 7:17 pm #14053
Mary
ParticipantUnable to walk more than 2-3 steps any more (power wheelchair), bladder control :-(.
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October 29, 2018 at 8:26 pm #14068
Debi Wilson
MemberSorry to hear that Mary, I have difficulty walking also. I use a walker and for longer excursions a wheelchair.
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