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Hey Guys! Im newbie!
Nice to be a part of this community!
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6 Replies
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Hi Marceletrido
I’m this sites other moderator.
What a great name – am presuming it’s your christian name. Had to really concentrate to spell it right! Hope I did!
A while back wrote a column ‘An Open Letter to a Newly Diagnosed Patient’ based on correspondence in the Newly Diagnosed forum. There might be something in all of this relevant to you.
Great that you’re posting already.
Best John
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Hello, I am new to this site too, and completely new new to forums. I hope i am in the correct place to ask this question.
I wanted to ask a question about an MS symptom that i have, and i have not come across anyone else who suffers with it – it is called Allodynia or skin pain and i find it a really horrible very painful symptom. My neurologist tells me there is no effective treatment for this pain. I wondered if anyone else has experienced this symptom? And what if anything you have found effective at reducing the pain? Thank you for any comments.
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Susan,
Allodynia is a new one on me. I haven’t heard of it in the 40 years that I’ve lived with MS. However, I have read comments on other sites from people who complain about serious skin pain. But I searched the main Multiple Sclerosis News Today website and found two articles that talk about it. One is a column and one is a report about a study. I hope they help.
Ed
https://multiplesclerosisnewstoday.com/2019/02/25/ms-nerve-pain-sensations/
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Hi Ed,
Thank you very much for responding to my question, and thank you soo much for telling me about the articles which i intend to read now even though it is late – i am most interested to see what they have to say – i can’t thank you enough. Much appreciated.
Susan
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I hope the info is useful, Susan. If nothing else, it’ll give you some information to shre with the neuro who thinks that nothing can be done.
Ed
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Hi Marceletrido, nice to meet you! Have a great experience on this forum. Good luck!
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