Tagged: New MS Patient
January 14, 2020 at 6:03 am #18951MarceletridoParticipant
Nice to be a part of this community!
January 14, 2020 at 10:29 am #18955John ConnorKeymaster
I’m this sites other moderator.
What a great name – am presuming it’s your christian name. Had to really concentrate to spell it right! Hope I did!
A while back wrote a column ‘An Open Letter to a Newly Diagnosed Patient’ based on correspondence in the Newly Diagnosed forum. There might be something in all of this relevant to you.
Great that you’re posting already.
February 7, 2020 at 4:15 am #19112Susan ErianParticipant
Hello, I am new to this site too, and completely new new to forums. I hope i am in the correct place to ask this question.
I wanted to ask a question about an MS symptom that i have, and i have not come across anyone else who suffers with it – it is called Allodynia or skin pain and i find it a really horrible very painful symptom. My neurologist tells me there is no effective treatment for this pain. I wondered if anyone else has experienced this symptom? And what if anything you have found effective at reducing the pain? Thank you for any comments.
February 7, 2020 at 8:31 am #19113Ed TobiasKeymaster
Allodynia is a new one on me. I haven’t heard of it in the 40 years that I’ve lived with MS. However, I have read comments on other sites from people who complain about serious skin pain. But I searched the main Multiple Sclerosis News Today website and found two articles that talk about it. One is a column and one is a report about a study. I hope they help.
February 7, 2020 at 4:40 pm #19117Susan ErianParticipant
Thank you very much for responding to my question, and thank you soo much for telling me about the articles which i intend to read now even though it is late – i am most interested to see what they have to say – i can’t thank you enough. Much appreciated.
February 11, 2020 at 8:23 am #19125Ed TobiasKeymaster
I hope the info is useful, Susan. If nothing else, it’ll give you some information to shre with the neuro who thinks that nothing can be done.
November 28, 2020 at 1:15 pm #20401Collette RandallParticipant
Hi Marceletrido, nice to meet you! Have a great experience on this forum. Good luck!
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