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    • #19219

      To mark Rare Disease Day on Feb. 29, Tamara Sellman uses her column to explore the significance to her of calling multiple sclerosis a ‘rare disease’. Click here to read Tamara’s column.

      How do you feel about calling MS a rare disease?

    • #19264
      John Connor
      Keymaster

      Used to think MS was a rare disease but recently I’m not sure.

      Updated figs in the UK put our numbers at 130,000. According to the UK MS Society ‘nearly 7,000 people are diagnosed each year. This means that around one in every 500 people in the UK has MS, and that each week, 130 people are diagnosed’.

      So if we’re not rare we could at least be a really big gang! Admittedly not one on motorbikes……

       

    • #19279
      Ed Tobias
      Keymaster

      I’m with you on this, John. In my column for this Friday (Feb. 28) I’ll be writing about how I think that Invisible Disease Day is more appropriate for MS than Rare Disease Day.

    • #19280
      Jacqueline
      Participant

      Yes ” Invisible Disease ” Day, as this is exactly what our MS is to non MS’ers…they simply have no clue as to realy what is going on inside our body…what the insides of our body really feels like to live with on a daily basis..

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