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Severe Trigeminal Nueralgia with MS lasts an hour
Does anyone have severe TN with their MS where episodes cause severe facial pain and last for about an hour? I can find no information to support TN causes the type of reaction my husband has to it. He has severe facial pain one side of face that doesn’t seem to be triggered by anything specific. He shakes uncontrollably when the pain is at it’s peak (but dr. said he isn’t haven’t a seizure). He gets very cold, can’t walk, sometimes his arm jolts out from the pain during an episode and almost passes out.
He was diagnosed with MS in March of 2020. TN came out of nowhere in September 2020. He is on carbamazepine for TN and injections for his MS. Recently his medication was increased to the max dose for his TN. And his MRI from October didn’t show compression or tumor around the Trigeminal nerve.
Has anyone else experience this at all? The fact I can’t find anyone with this reaction is very unsettling.
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