May 11, 2021 at 9:33 am #20847
It all feels bleak. Long ago I adopted the philosophy of accepting what was – rather than what I wanted it to be. This didn’t stop me from trying to change things however, but this looks pretty unchangeable!
Anyone got any thoughts, ideas, gone thru this themselves.
May 12, 2021 at 12:25 pm #20850YvonneParticipant
I admire anybody who tries to make MS a ‘known and knowable’ disease. Thanks for those who do!
May 12, 2021 at 12:46 pm #20851
Ta Yvonne. I’m not that altruistic there is a stipend involved.
May 12, 2021 at 9:18 pm #20854shortyParticipant
It’s still a commendable enterprize John. Finding information about MS and its effects, treatments and consequences can be difficult for a lot of people.
May 13, 2021 at 12:19 pm #20869
Hey Shorty, all your replies r very commendable. Get a lot of response to my columns but not so much on here! And this is supposed to be a space for discussion.
Ask away about info, I probably won’t know it, but Ed my co-moderator probably will!. He’s had MS for 40 years & has been writing about it far longer than me.
May 13, 2021 at 7:12 pm #20870shortyParticipant
Thanks John. I keep pretty well up to date with it but a lot of people do seem to struggle. Have a good one.
May 19, 2021 at 11:27 am #20872Ed TobiasKeymaster
It’s been a busy and stressful week for me. I’m changing my legal residence from Maryland to Florida and when I went to change my driver’s license they made me take a driving test. At age 72!! Keep an eye out for my MS Wire column this Friday in which I tell that tale.
I love trying to help people, both able bodied and us MS “gimps,” understand more about our illness. I’m amazed at the lack of knowledge out there – even on the part of some neurologists – so I’ve written my column here for almost 5 years and have also written a book: “We’re Not Drunk, We Have MS.”
I follow the belief that, rather than hiding from the storm it’s better to learn to dance in the rain. I hope you all do the same.
May 19, 2021 at 1:16 pm #20875
That’s quite an achievement if u passed it Ed, Even if I was able bodied I’d struggle to pass a UK driving test today. They’ve got a lot harder and I’d resent the time [and money] it would take to do it!
Precociously I took my first test on my 17th birthday [our legal age to start driving in the UK]. Of course I failed, not because I couldn’t drive – I just couldn’t drive for the test! Had six lessons with a v. skeptical instructor. Want back and passed.
Now, I can’t even get into my ridiculously expensive, adapted drivers seat!
- This reply was modified 1 year, 2 months ago by John Connor.
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