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Sometimes I just want to walk.
Sometimes I just want to walk and get up and go, without having to think about each move I make so I don’t fall over. As I sit here I plan to multi task before I get up, can’t do it on the fly. In my mind I think how did this happen to me? The only time I am comfy is in bed. Every morning when I wake up…I say to myself, “not this again, another day of aimless existence”. My mind wants to move faster than my body, it took about 3 years for my mind to adjust to my slowness, and I hate how slow I am now. Sometimes I wonder how did I get so slow? is it real? am I making it up?
Like I mentioned. I just want to walk because I remember being able to walk. But that is never going to happen again with PPMS.
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5 Replies
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Hi Jilly,
I lost the ability to walk a few years ago. Also my days of using a manual wheelchair just skedaddled. So obvs. did my budding career – NOT! – in wheelchair tennis.
The upside is a powered wheelchair – no falling worries and at top speed it’s as fast as an Olympic walker. Though, a tad unnerving.
Cheers John
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Hiya John, thanks for chiming in.
I wonder at what point do I move to a wheelchair. I don’t know how bad it has to get. I suppose if I am dragging my leg is an indicator.
I can’t see myself playing wheelchair tennis, I have trouble just leaving the house. I’d rather be dead than live like this, it’s very pedestrian and predictable.
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Hi Jilly
It sounds like it’s time for u going wheelie mobile.
How r u’re arms? My right one became near useless so I could no longer use a manual chair. However fatigue sets in with any distance. I couldn’t go anywhere on my own as even slight inclines proved impossible.
I’ve also had to adapt the drive and front door [all now wheelchair friendly] so can venture out on easily.
It was attending an outdoor music festival in 2012 that made us all realize I needed a chair. Had to beg for one from the organizers as they had no transport for the disabled. Sheesh.
Hope this helps. Please let me know how u get on.
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Hi Jilly,
Have you considered an electric scooter, rather than a chair? I got one more than 10 years ago and it was one of the best decisions I ever made. It allowed me to continue working full-time much longer than I would have been able to without it and I use a lightweight one that can be folded to travel all over the world.
Stop suffering. Try your best to get some wheels and get out of the house!
Ed
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Thanks guys. I just don’t know how bad you have to get, but I am very slow moving with my walker. I have one good leg, but even that doesn’t seem to help, my arms are good.
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