November 16, 2021 at 9:58 pm #21500
Sometimes I just want to walk and get up and go, without having to think about each move I make so I don’t fall over. As I sit here I plan to multi task before I get up, can’t do it on the fly. In my mind I think how did this happen to me? The only time I am comfy is in bed. Every morning when I wake up…I say to myself, “not this again, another day of aimless existence”. My mind wants to move faster than my body, it took about 3 years for my mind to adjust to my slowness, and I hate how slow I am now. Sometimes I wonder how did I get so slow? is it real? am I making it up?
Like I mentioned. I just want to walk because I remember being able to walk. But that is never going to happen again with PPMS.
November 17, 2021 at 10:13 am #21501John ConnorKeymaster
I lost the ability to walk a few years ago. Also my days of using a manual wheelchair just skedaddled. So obvs. did my budding career – NOT! – in wheelchair tennis.
The upside is a powered wheelchair – no falling worries and at top speed it’s as fast as an Olympic walker. Though, a tad unnerving.
November 18, 2021 at 9:22 pm #21508
Hiya John, thanks for chiming in.
I wonder at what point do I move to a wheelchair. I don’t know how bad it has to get. I suppose if I am dragging my leg is an indicator.
I can’t see myself playing wheelchair tennis, I have trouble just leaving the house. I’d rather be dead than live like this, it’s very pedestrian and predictable.
- This reply was modified 1 year ago by Jilly.
November 21, 2021 at 9:52 am #21511John ConnorKeymaster
It sounds like it’s time for u going wheelie mobile.
How r u’re arms? My right one became near useless so I could no longer use a manual chair. However fatigue sets in with any distance. I couldn’t go anywhere on my own as even slight inclines proved impossible.
I’ve also had to adapt the drive and front door [all now wheelchair friendly] so can venture out on easily.
It was attending an outdoor music festival in 2012 that made us all realize I needed a chair. Had to beg for one from the organizers as they had no transport for the disabled. Sheesh.
Hope this helps. Please let me know how u get on.
November 23, 2021 at 10:20 am #21513Ed TobiasKeymaster
Have you considered an electric scooter, rather than a chair? I got one more than 10 years ago and it was one of the best decisions I ever made. It allowed me to continue working full-time much longer than I would have been able to without it and I use a lightweight one that can be folded to travel all over the world.
Stop suffering. Try your best to get some wheels and get out of the house!
November 23, 2021 at 6:59 pm #21517
Thanks guys. I just don’t know how bad you have to get, but I am very slow moving with my walker. I have one good leg, but even that doesn’t seem to help, my arms are good.
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