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  • Tysabri

    Posted by Michael on May 16, 2018 at 2:46 pm

    I am approaching #97th infusion of Tysabri.  Last month my Dr. changed my schedule from every 4 weeks to 6 weeks.

    Has this happened to anyone else?

    ed-tobias replied 7 years ago 3 Members · 2 Replies
  • 2 Replies
  • Debi Wilson

    Member
    May 16, 2018 at 4:40 pm

    Hi Michael,
    Welcome to the MS forums!

    You have been on Tysabri approx 8 years? That seems like a long time on the same drug, maybe that is the reason for the Doctors change? Did you notice any difference being on it, has it helped slow progression?

  • ed-tobias

    Member
    May 16, 2018 at 4:47 pm

    Hi Michael,

    Yes. When my JCV titer level reached a certain point my neuro switched me from every 4 weeks to every 8 weeks. Research shows that reducing the infusion frequency lowers the likelihood of a PML infection. I wrote something about that a few months ago.

    Ed

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