Authentically Human - a Column by Desiree Lama

Desiree Lama is a 20-something-year-old PhD student living in Austin, Texas. She was diagnosed with relapsing-remitting multiple sclerosis during high school at only 17 years old but began experiencing symptoms at 14. Since a young age, she has found a safe haven in writing because her grandma fostered her love for words and learning. Desiree lives her life through being authentically human in a superficial world. In this column, she will share personal memos of being a disabled, bisexual Mexican woman in an overcritical world. Desiree hopes that this column will encapsulate the captivatingly burdensome feelings of human existence, especially for those living with MS.

My MS advocacy journey and being a voice for change

For as long as I can remember, Iā€™ve wanted to help others in any way I could. As early as middle school, I tried to identify a plausible and realistic career where I could fulfill this desire, and eventually landed on therapy as a possible career path. I wanted to…

Finding a way to treat the irritability that can come with MS

Too often, I’d find myself amid joyful moments with loved ones, struggling to keep irritability at bay. At those times, my mind would stagger between living in the happiness of the moment or an overwhelming sense of overstimulation, annoyance, and frustration. Most of the time, the irritability took over. When…

After a long month, I’m appreciating life without MS worries, for now

Being diagnosed with relapsing-remitting multiple sclerosis doesnā€™t necessarily mean that other health complications or conditions won’t arise. According to an article published in the journal Multiple Sclerosis and Related Disorders, multiple sclerosis (MS) patients have significantly higher rates of comorbidity and morbidity than people who don’t have…

Communication in relationships is crucial when living with MS

After I was diagnosed with relapsing-remitting multiple sclerosis (MS) in 2016, I thought I’d never find a partner who understood the complexities and nuances of my condition. For years, I wondered, ā€œIf I can barely comprehend the knowns and unknowns of living with MS, how could anyone else?ā€ Oh…

Navigating the stigma that accompanies invisible MS symptoms

In the world of chronic illness, people tend to be perceived differently depending on the visibility of their condition. Some illnesses are easily noticeable while others aren’t, but both pose significant challenges to day-to-day life. I’ve been living with relapsing-remitting multiple sclerosis since 2016, and for the most part,…

Learning to embrace a diagnosis of MS as part of my identity

Identity development is a deeply unique process in which people establish a clear sense of self. Different stages occur during childhood, adolescence, and adulthood. The process of developing an identity has always fascinated me because there are many different factors that influence us and shape who we become.

The road to my MS diagnosis started through the eyes

I was sitting in an introductory biology class during the second semester of my freshman year in high school when things started going downhill. The teacher was presenting a lesson about the functions of plants, or something in that realm that I donā€™t remember. I sat in the back row,…

The benefits of having a cat while living with MS

Because of the emotional and mental toll that my relapsing-remitting multiple sclerosis diagnosis had on me, I wanted a cat to help me cope with and navigate life with the condition. I knew having a pet would improve my mood and give me a reason to get out of…

New fears and anxiety associated with MS progression

Note: This column refers to the authorā€™s own experience with Gilenya (fingolimod). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. On a recent Friday, all was calm and peaceful in my household. I was bundled up in my bed watching…

Switching to new medications brings challenges in life with MS

Note: This column describes the authorā€™s own experiences with sleep medications and antidepressants. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Many years ago, it was brought to my attention that I suffer from insomnia and chronic fatigue.

A letter to a younger me newly diagnosed with MS

Dear younger self, As I sit down to write this letter, I canā€™t help but tear up at the thought of you. First and foremost, you’re an amazing soul, full of life and with a bright future ahead of you. But you’ve just received life-changing news, and it feels…