Authentically Human - a Column by Desiree Lama

Desiree Lama is a 20-something-year-old PhD student living in Austin, Texas. She was diagnosed with relapsing-remitting multiple sclerosis during high school at only 17 years old but began experiencing symptoms at 14. Since a young age, she has found a safe haven in writing because her grandma fostered her love for words and learning. Desiree lives her life through being authentically human in a superficial world. In this column, she will share personal memos of being a disabled, bisexual Mexican woman in an overcritical world. Desiree hopes that this column will encapsulate the captivatingly burdensome feelings of human existence, especially for those living with MS.

The end of daylight saving time gives me a chance to rest

On Sunday, Nov. 2, daylight saving time ended, our clocks “falling back” an hour. This time of year is difficult for many because the sun sets earlier and the evenings are darker. This can contribute to seasonal depression for a lot of people. However, I experience the opposite. Long before…

The importance of compassion while living with MS

Living with multiple sclerosis (MS) often means constantly balancing what your body needs with what your life demands. Some days you’re managing symptoms like fatigue, while other days you’re trying to keep up with work, relationships, and other responsibilities that don’t pause for flare-ups or doctor appointments. Amid all…

How I handle depth perception and driving with MS

Have you ever been on a flight of stairs and misjudged the height of the steps, causing you to lose your footing? That happens to me more than I’d like to admit. This misjudgment stems from our depth perception, which is our ability to view the world in three dimensions,…

Organizing my health: How my pill box became a lifeline

Before 2016, I didn’t need to take any prescription medications, at least not regularly. But during my first episode of optic neuritis and a few years later, after my diagnosis of relapsing-remitting multiple sclerosis, I was forced to create a new habit. During that first episode of optic…

Remembering to take a break is key when I travel with MS

Along with creating memories with loved ones and exploring new places, traveling can be exhausting. There’s packing beforehand, scheduling itineraries, and then the actual traveling, whether it’s on the road or in the air. It can be especially challenging for people living with multiple sclerosis (MS). As I write…

Summer and MS-related heat intolerance aren’t a good mix

The summer months and the central Texas heat have arrived, and I feel indifferent about them. As someone with multiple sclerosis (MS) who experiences related heat intolerance, I try to avoid spending an extended amount of time outside. That saddens me because most of the summer fun occurs outdoors.

Community and human connections are vital in life with MS

One of the most essential parts of living with multiple sclerosis (MS) is building support systems. They offer practical help, but better yet, they also consider and foster our emotional survival. MS is full of unknowns and can thus be characterized as unpredictable. But one thing we can predict…

The realities of living with MS-related cognitive impairments

Of all of the cognitive functions that multiple sclerosis (MS) can affect, memory and processing issues have been my primary burdens. I’ve found them difficult to navigate and manage, especially when others don’t fully understand the extent to which they affect me. My MS-related cognitive impairments have resulted…

My parents are my strength while I’m living with MS

On May 10, surrounded by my loved ones, I received my Master of Arts in educational psychology from the University of Texas at Austin. As I heard the words of love and encouragement from my family and friends, I realized just how difficult my educational journey has been because of…

What happened during my least enjoyable MRI experience

Before I received my relapsing-remitting multiple sclerosis (MS) diagnosis in 2016, I underwent a standard MRI exam, with and without contrast, that scanned my brain, thorax, and cervical spine. I’d never had an MRI before this one. I was vaguely familiar with what the machine looked like, but it’s…

My bladder problems are resurfacing after years of treatment

Note: This column describes the author’s own experiences with oxybutynin. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. A few years ago, I spent the summer at my mom’s apartment because I’d been living in college dorms and my semester…

New year, new ways of approaching rest and relaxtion

The beginning of the new year is an opportunity for a fresh start, change, and personal growth. Even before I was diagnosed with relapsing-remitting multiple sclerosis, I struggled deeply to allow myself moments of rest and peace, and that continues today. I’m aware of those struggles, but until now…

It’s frustrating when heat aggravates my MS symptoms

Being born and raised in south-central Texas, I’m no stranger to the heat here that dominates most of the year. But even after 25 years of living in Texas, I don’t think I’m used to it. While some people embrace and enjoy warmer weather, my body rejects it altogether, especially…

My mom has been my advocate as I’ve been living with MS

I was diagnosed with relapsing-remitting multiple sclerosis at 17 years old, during my senior year of high school. At that time, the diagnosis was the least of my worries because my top priorities were senior year activities and college preparation. The truth, however, was that I didn’t comprehend what…

My MS advocacy journey and being a voice for change

For as long as I can remember, I’ve wanted to help others in any way I could. As early as middle school, I tried to identify a plausible and realistic career where I could fulfill this desire, and eventually landed on therapy as a possible career path. I wanted to…

Finding a way to treat the irritability that can come with MS

Too often, I’d find myself amid joyful moments with loved ones, struggling to keep irritability at bay. At those times, my mind would stagger between living in the happiness of the moment or an overwhelming sense of overstimulation, annoyance, and frustration. Most of the time, the irritability took over. When…

After a long month, I’m appreciating life without MS worries, for now

Being diagnosed with relapsing-remitting multiple sclerosis doesn’t necessarily mean that other health complications or conditions won’t arise. According to an article published in the journal Multiple Sclerosis and Related Disorders, multiple sclerosis (MS) patients have significantly higher rates of comorbidity and morbidity than people who don’t have…