Columns

June 24, 2019June 24, 2019

MS News that Caught My Eye Last Week: Plant Medication Trial, B-cell Depletion Study, MS App Award, DMTs’ Cancer Risk

Columns, The MS Wire - A Column by Ed Tobias

Cyxone Launches Phase 1 Trial Assessing T20K for MS This trial caught my eye because even though it’s a small, early trial, T20K is a medication derived from a ... Read more

June 21, 2019June 19, 2019

Nearly Thwarted by a Step

Columns, Fall Down, Get Up Again- a Column by John Connor

Even in my able-bodied days, I was hardly Channing Tatum — who is? Model, actor, dancer, singer, and he even has the audacity to be funny. There might not ... Read more

June 21, 2019June 19, 2019

Scooters, Walkers, and Canes Should Trump Ego

Columns, The MS Wire - A Column by Ed Tobias

I’ve used an electric scooter for nearly 20 years. At first, I only used it when I knew I’d be walking a lot. Now, it’s every day. I used ... Read more

June 20, 2019June 17, 2019

Need to Know: What Are ACTRIMS and ECTRIMS?

Columns, MS in Moderation, a column by Tamara Sellman

Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s ... Read more

June 19, 2019June 17, 2019

Climbing Out of the Dark Hole of Depression

Columns, MSunderstood Millennial - a Column by Stephanie Towler

Multiple sclerosis (MS) is a chronic illness accompanied by various symptoms. Depression is one of the most common. Depression is a shape-shifter and affects one’s life in different ways. ... Read more

June 18, 2019June 18, 2019

Some Neuros Make DMT Choice Harder than It Should Be

Alexa, Columns, The MS Wire - A Column by Ed Tobias

More than 15 disease-modifying therapies (DMTs) are available in most high-income countries to treat multiple sclerosis (MS). DMTs come in the form of injectables, infusions, and pills. Some are ... Read more

June 17, 2019June 17, 2019

MS News that Caught My Eye Last Week: DMT Strategy Study, MS and Genetic Mutations, MS Art Project, AI Helps Neuros Read MRIs

Columns, The MS Wire - A Column by Ed Tobias

DELIVER-MS Trial Recruiting RRMS Patients to Help Improve Treatment Decision-making What’s the best way to attack multiple sclerosis when it’s first diagnosed? Do you hit it hard and fast ... Read more

June 14, 2019June 12, 2019

How Does Your Garden Grow?

A Life in Letters -- A Column By Jamie Hughes, Columns

A few weeks ago, I told you that I’d made a decision: I had to slow down. I think and talk quickly. I work quickly and drive much too ... Read more

June 14, 2019June 12, 2019

What the Falck Is Going On?

Columns, Fall Down, Get Up Again- a Column by John Connor

Stranded. Not on a desert island but in an empty hospital ward. Earlier, it had been filled with fellow MSers getting their Ocrevus (ocrelizumab) infusions. I write “fellow,” but ... Read more

June 14, 2019June 12, 2019

Tony Awards ‘Cain’t Say No’ to Ali Stroker

Columns, The MS Wire - A Column by Ed Tobias

Rather than hiding from the storm, it’s better to learn to dance in the rain, as I like to say. Ali Stroker, who plays Ado Annie in the Broadway ... Read more

June 13, 2019June 10, 2019

Need to Know: What Is the Blood Brain Barrier?

Columns, MS in Moderation, a column by Tamara Sellman

Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question ... Read more

June 13, 2019June 11, 2019

Move It or Lose It: Movement Is Crucial to Well-being with MS

Columns, Silver Linings - a Column by Jennifer Powell

A well-known mantra exists in the multiple sclerosis (MS) community. I first heard it after my diagnosis and have since adopted it as my own. “Move it or lose ... Read more

June 11, 2019June 6, 2019

Making Invisible Patients Visible

Columns, The MS Wire - A Column by Ed Tobias

You may have felt what Bethanee Epifani Bryant has felt in a doctor’s office. I think many patients have, but most of us can’t paint the picture of our ... Read more

June 10, 2019June 10, 2019

MS News That Caught My Eye Last Week: Ozanimod for RRMS, MS Monitoring App, Video Series

Columns, The MS Wire - A Column by Ed Tobias

FDA and EMA to Review Ozanimod as Possible Oral Therapy for Relapsing MS Another disease-modifying therapy (DMT) is a step closer to gaining approval for use both in the ... Read more

June 7, 2019June 5, 2019

Thank You for Sharing

Columns, Fall Down, Get Up Again- a Column by John Connor

“Thank you for sharing” is a clichéd phrase I never expected to use, or indeed have used toward me! However, it is often bandied at the end of these ... Read more

June 7, 2019June 4, 2019

My MS Has Been No Sweat. Has Yours, Too?

Columns, The MS Wire - A Column by Ed Tobias

I worked up a little sweat when I was exercising the other day. It was just a tiny bit on my forehead, but it was something I hadn’t felt ... Read more

June 6, 2019June 3, 2019

Need to Know: What Are MS Cooling Vests?

Columns, MS in Moderation, a column by Tamara Sellman

June 6, 2019June 5, 2019

Consortium for a Cure: Witnessing Hope

Columns, Silver Linings - a Column by Jennifer Powell

Our emotional selves are unique to each of us. The catalysts that elicit tears and fears vary. We feel emotions rise and await their eruption. Contrarily, they can catch ... Read more

June 5, 2019May 31, 2019

I Am a Millennial with Multiple Sclerosis

Columns, MSunderstood Millennial - a Column by Stephanie Towler

I remember the day like it was yesterday: Sept. 20, 2012. I was fortunate to receive a swift diagnosis — following a couple of tests, my neurologist told me ... Read more

June 3, 2019June 3, 2019

MS News that Caught My Eye Last Week: Preventive MS Treatment, Clinical Trial Guidelines for Kids, Stress, and Gut Bacteria

Columns, The MS Wire - A Column by Ed Tobias

Cyxone Nears First-in-human Trial for Investigational Preventive MS Treatment T20K Multiple sclerosis can be treated but it can’t be prevented — at least not yet. But these researchers hope ... Read more

May 31, 2019May 29, 2019

A Wee Trip — But Not Like in the Past

Columns, Fall Down, Get Up Again- a Column by John Connor

I looked at the road, then west to the horizon. It was the Trans-Canada Highway. I was standing just outside Halifax, Nova Scotia. A 23-year-old intending to hitchhike the ... Read more

May 31, 2019May 29, 2019

Walmart Is Putting Quality of Employee MRIs Before Cost

Columns, The MS Wire - A Column by Ed Tobias

Did you know that not all magnetic resonance imaging (MRI) exams are of equal quality? Walmart officials know this, and they are concerned that poor exams given to their ... Read more

May 30, 2019May 28, 2019

Need to Know: Why Are My Feet Burning?

Columns, MS in Moderation, a column by Tamara Sellman

Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s ... Read more

May 30, 2019May 28, 2019

Chariots of Enlightenment: Overcoming My Fear of a Wheelchair

Columns, Silver Linings - a Column by Jennifer Powell

Living with multiple sclerosis (MS) is an education in and of itself. I’ve learned a lot about myself and I am a different person now, nine years after my ... Read more

May 28, 2019May 23, 2019

To Handle MS, Sometimes We Need a Little Attitude

Columns, The MS Wire - A Column by Ed Tobias

The other day, a young woman with multiple sclerosis (MS) shared her worry in a Facebook group that her disease would prevent her from playing with her grandchildren someday. ... Read more

May 24, 2019May 22, 2019

Years of Laughter: It’s Been a Mammoth 40 Years

Columns, Fall Down, Get Up Again- a Column by John Connor

Last Monday night, I was strangely in the audience at London’s Comedy Store. At a rough calculation, I have directed about 1,500 shows there, have been in the audience ... Read more

May 24, 2019May 23, 2019

Why I Take My MS to the Gym

Columns, The MS Wire - A Column by Ed Tobias

I rode a recumbent bike for 15 minutes today. That’s a record for me, and it felt great. The bike ride was part of an overall exercise routine that ... Read more

May 23, 2019May 22, 2019

Need to Know: What Are Stem Cells?

Columns, MS in Moderation, a column by Tamara Sellman

May 23, 2019May 22, 2019

MS Study Looks at Minimizing and Preventing Falls for Wheelchair and Scooter Users

Columns, Engaging Thoughts

When I think of multiple sclerosis and falls, I tend to think about people who are upright and walking when it happens. I hadn’t considered the risks for people ... Read more

May 21, 2019May 17, 2019

Staying Afloat in the Middle of the Storm

Columns, Patiently Awakened - A Column by Teresa Wright-Johnson

The storms keep coming. Whenever I think I will land ashore, a hurricane sends me back into the eye of the storm. I want to write; however, I fall ... Read more

May 21, 2019May 17, 2019

Humpty Dumpty and My MS

Columns, The MS Wire - A Column by Ed Tobias

I’ve met Humpty Dumpty, and he is me. I made that discovery the other night when I had a bad fall. It wasn’t off a wall; it was just ... Read more

May 20, 2019May 20, 2019

MS News that Caught My Eye Last Week: MS Biomarker, Best RRMS Early Treatment, Ocrevus Study, Out-of-Pocket Costs

Columns, The MS Wire - A Column by Ed Tobias

#AANAM – Biogen Offers Update on Development Plans for MS Therapies The pharma company that brought you Tysabri (natalizumab) is investigating a new process for treating multiple sclerosis. The ... Read more

May 17, 2019May 16, 2019

As If You Needed Another Reason to Eat Cake

A Life in Letters -- A Column By Jamie Hughes, Columns

I was at a church function last Saturday, chatting with the guest speaker and her mother, and I noticed that the older woman was making several trips to the ... Read more

May 17, 2019May 16, 2019

Sunday Morning

Columns, Fall Down, Get Up Again- a Column by John Connor

It was a sunny Lower East Side of Manhattan Sunday morning. The bulbous New York Times was shoved, just about, under my arm. I drank a coffee in the ... Read more

May 17, 2019May 16, 2019

MS Is a Pain, and Doctors Should Know It

Columns, The MS Wire - A Column by Ed Tobias

Dear Doctor, Why is it that you, or at least some of your colleagues, think that multiple sclerosis isn’t painful? Did you skip the med school class where they ... Read more

May 16, 2019June 21, 2019

Need to Know: What Is Dysarthria?

Columns, MS in Moderation, a column by Tamara Sellman

Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s ... Read more

May 16, 2019May 17, 2019

Trading Teacups for Buckets: Keeping Dreams Alive with SPMS

Columns, Silver Linings - a Column by Jennifer Powell

They say that the only certainties in life are death and taxes. While I agree with these two, a third inevitability is capitulation. Why do we have theme parks ... Read more

May 13, 2019May 13, 2019

MS News that Caught My Eye Last Week: Lemtrada Satisfaction, Limiting Tysabri’s PML Risk, MS and Pregnancy, Infusions Vs. Pills

Columns, The MS Wire - A Column by Ed Tobias

#AANAM – RRMS Patients Switching to Lemtrada Report Greater Satisfaction with Treatment and Improvements in Quality of Life I’m a self-proclaimed secondary progressive, rather than a remitting, multiple sclerosis ... Read more

May 10, 2019May 8, 2019

I Survived a Marathon Comedy Festival

Columns, Fall Down, Get Up Again- a Column by John Connor

Exactly one year ago on this day of writing, I was down and out. This year, I’m not exactly fighting fit, but the same set of circumstances has pushed ... Read more

May 10, 2019May 8, 2019

Diets and Supplements: Do They Really Help Your MS?

Columns, The MS Wire - A Column by Ed Tobias

When I read online posts from people who treat their multiple sclerosis (MS) with vitamins and supplements, I wonder how many of us do that. And if these supplements ... Read more

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