November 24, 2023 Columns by Ed Tobias What it was like attending a Queen concert with a mobility aid For someone with multiple sclerosis (MS), going to a venue to see a concert or sporting event can be an experience filled with uncertainty — especially if, like me, they’re using a mobility aid. For me to do…
November 20, 2023 Columns by Ed Tobias MS news notes: COVID-19, MS blood tests Welcome to “MS News Notes,” a column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. Here’s a look at some of what’s been happening. MS relapses and COVID-19…
November 17, 2023 Columns by Ed Tobias What I’m thankful for this Thanksgiving It wasn’t a good morning. I was dragging my cement-pillar legs around the kitchen and grew frustrated as I lurched from the refrigerator to the counter to feed the cat and the dog. I’d propped my…
November 13, 2023 Columns by Ed Tobias MS news notes: ATA188, biomarkers for MS progression Welcome to “MS News Notes,” a column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. Here’s a look at what’s been happening: ATA188 fails a big test ATA188…
November 6, 2023 Columns by Ed Tobias MS news notes: Stem cell transplant, artificial intelligence Welcome to “MS News Notes,” a column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. Here’s a look at what’s been happening: Lemtrada or stem cell transplant? While…
November 3, 2023 Columns by Ed Tobias My bladder is doing much better these days, but why? I slept through the night last night. Recently, I’ve managed to do that on most nights. No 4 a.m. bathroom trips for me! That’s a big deal. There was a time when I’d get up two or even three…
October 30, 2023 Columns by Ed Tobias MS news notes: Dalfampridine, Neural Sleeve, vitamin D Welcome to “MS News Notes,” a column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. Here’s a look at what’s been happening: Dalfampridine side effects The side effects…
October 27, 2023 Columns by Ed Tobias Drawn back to the Sunshine State, where my MS symptoms feel better I’m back in my happy place. My wife, Laura, and I, along with our Yorkie-poo and our Maine Coon cat, have made it back to our Florida home after 16 hours and about 1,000 miles of…
October 23, 2023 Columns by Ed Tobias MS news notes: EBV, stopping a DMT, 3 treatment reports Welcome to “MS News Notes,” a column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. This week, the stories cover research presented at the joint meeting of the…
October 20, 2023 Columns by Ed Tobias Musicians living with MS find inspiration in their conditions “I’m so tiredThe hammer’s coming down againI’m hardwiredAll the signals cross and double backBroken insideThere’s no fixing anythingHow do i explainI’m fighting every day to do the simple things?” The lyrics to…
October 16, 2023 Columns by Ed Tobias MS news notes: Ocrevus injection, Tysabri scheduling, OCH for SPMS Welcome to “MS News Notes,” a column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. This week, the stories cover research presented at the joint meeting of the…
October 13, 2023 Columns by Ed Tobias A breakdown has me scouting out new scooters for my MS My mobility scooter died last week. I can walk 100 feet or so using a pair of canes, but my wheels are usually my legs. So when I turned the key and discovered those “legs” were…
October 9, 2023 Columns by Ed Tobias MS news notes: Silent progression, ignoring treatments Welcome to “MS News Notes,” a column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. Here’s a look at what’s been happening: ‘Silent’ MS progression Readers of the…
October 6, 2023 Columns by Ed Tobias People with disabilities should be part of equity in healthcare You’d think that people with multiple sclerosis (MS) and other disabilities would have easy access to healthcare services. That’s not always so. A small study in the journal Health Affairs that I wrote…
October 2, 2023 Columns by Ed Tobias MS news notes: Stem cell transplant, Lemtrada, treating seniors Welcome to “MS News Notes,” a column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. Here’s a look at what’s been happening: Stem cell transplant found to be…
September 29, 2023 Columns by Ed Tobias What you need to know about COVID-19, flu, and RSV vaccines My wife and I got the latest COVID-19 vaccine the other day, the first of three vaccines we’ll be getting this fall. The others are the seasonal flu vaccine and the respiratory syncytial virus (RSV) vaccine.
September 25, 2023 Columns by Ed Tobias MS news notes: ANK-700, traveling for treatment, cognition Welcome to “MS News Notes,” a column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. Here’s a look at what’s been happening: An ‘inverse vaccine’ trial to treat…
September 22, 2023 Columns by Ed Tobias Have you struggled to find a neurologist who understands MS? A question that’s been bothering me lately is this: It seems that more than a few neurologists have a less than optimal understanding of multiple sclerosis (MS). Why is that? In my four decades of living with…
September 18, 2023 Columns by Ed Tobias MS news notes: Vaccines, migraines, eye-tracking technology Welcome to “MS News Notes,” a column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. Here’s a look at what’s been happening: Vaccines pose no unusual risk of…
November 30, 2023 Columns by Benjamin Hofmeister Is multiple sclerosis everywhere, or am I just more aware of it now?
