- This topic has 27 replies, 11 voices, and was last updated 3 years, 11 months ago by
Linda.
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May 9, 2018 at 12:25 pm #11574
Debi Wilson
MemberHow do you think your MS developed? There are many theories on how MS begins, one theory is the Epstein-Barr virus.
Mononucleosis ( Epstein-Barr virus ) is something I had at fourteen. That is how I think my MS developed, what about yours?
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May 9, 2018 at 1:18 pm #11578
Jacqueline
ParticipantSure I posted elsewhere but there is also talk of shingles which I caught guess it must have been 7 years ago now, it was too late to be treated at the time…
I also found and met a half sister a short time before my diagnoses, who herself had MS..we shared the same mom…
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May 12, 2018 at 1:44 pm #11633
Tanner
ParticipantMono at 18, MS symptoms first noticed in mid 20s. I believe there’s a connection between EB virus and the onset of MS.
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May 12, 2018 at 2:38 pm #11636
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May 12, 2018 at 2:41 pm #11637
Debi Wilson
MemberInteresting, Tanner. I had Mono at 14, I definitely agree there is a connection!
How are you doing now?
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May 9, 2018 at 2:41 pm #11585
Debi Wilson
MemberThat is interesting Jackie. So it could have been both factors for you. Did your sister also have shingles or another virus at anytime?
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May 9, 2018 at 3:25 pm #11589
Jacqueline
ParticipantSorry Debi cant answer that one as we didn’t discuss MS at the time, during the three hours were were in each others company (as haven’t seen her since ) as my walking problems were just walking problems as I had mentioned to her…Strangely now, the more I read on what foods we put inside our gut, I find now I am leading more towards that theory…the theory that we may have caused this unknowingly ourselves, perhaps laying dormant until something we done set it off…
I would be Interested in hearing how many people who have had shingles, now have MS..
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This reply was modified 4 years, 8 months ago by
Jacqueline.
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This reply was modified 4 years, 8 months ago by
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May 9, 2018 at 3:29 pm #11591
Debi Wilson
MemberYes, it is hard to say. I would love to hear what others have to say about it also, wouldn’t you, Jackie? It’s very interesting, I think the more we all share our histories, the more MS similarities will appear.
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May 15, 2018 at 4:43 pm #11706
Sue Pinchen
ParticipantDouble whammy for me, mother had parkinsons, ancestors all came from Northern Europe, glandular fever at 10, allergies, gut problems, I wont bore you with anything else, starting to have walking problems, can only go 800 metres with walker before spasticity sets in, controlling it the best I can with diet, exercise, lifestyle and supplements, magnesium, vit. D, biotin, tried avonex for a while, made my life of misery, just getting on with life. Stay positive.
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May 15, 2018 at 3:44 pm #11704
Valerie Ann Moore
ParticipantI had chicken pox when I was about 8 years old, mononucleosis at 15, and shingles at 25. Having read some theories on the genesis of MS, a dormant virus that is triggered by a traumatic event is what I believe now.
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May 15, 2018 at 4:49 pm #11708
Debi Wilson
MemberSounds like you are doing all the right things Sue!
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May 15, 2018 at 4:36 pm #11705
Ed Tobias
KeymasterHi Valerie,
I also had chicken pox, probably around age 8. Also scarlet fever. It wouldn’t surprise me if there was some connection to my MS.
A column that I recently wrote about the Epstein-Barr virus might interest you.
Ed
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May 15, 2018 at 4:44 pm #11707
Debi Wilson
MemberVery similar to me Valerie, except I didn’t have shingles.
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May 19, 2018 at 1:39 am #11793
Circusvargas3
ParticipantI was diagnosed with a rare blood virus when I was 8. Henoch Schullen Purpura. Only 2 people had it in the state at the time. In my 20’s diagnosed with MS. Always looked for a connection could never find any writings about it. Glad to see discussions.
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May 19, 2018 at 1:41 am #11794
Circusvargas3
ParticipantAlso had a horrible case of chicken pox in my 20’s. About 2 years before MS diagnosis.
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May 19, 2018 at 11:35 am #11795
Debi Wilson
MemberWelcome to the MS forums, Carolyn! Glad you are here and joining in!
Virus, seems to be a connecting word in this discussion! It seems the more I read and hear others stories, there is a true virus and MS connection!-
This reply was modified 4 years, 8 months ago by
Debi Wilson.
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This reply was modified 4 years, 8 months ago by
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May 27, 2018 at 6:33 am #11907
Crystal B
ParticipantBoth
I had a surgery that led to a staph infection and a couple of months later I started havingmy 1st symptoms of MS. Wasn’t diagnosed until 3 years later.
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May 27, 2018 at 9:25 am #11908
Debi Wilson
MemberHi Crystal,
Welcomr to the MS forums, thank-you for sharing your story! It is interesting, does anyone else in your family have MS also?
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May 27, 2018 at 12:44 pm #11909
Crystal B
ParticipantThank you. Yes, Two cousins on my father’s side.
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May 27, 2018 at 1:17 pm #11910
Jacqueline
ParticipantI had earlier omitted to mention that a female cousin of mine also had MS when we were in our teens or 20s…her mother was my auntie…my fathers sister….Then only 1 or 1 & a half years before my diagnoses I had met a half sister I never knew I had out of the blue, she was just a tad younger than me who also had MS, her mother was my birth mother who gave me up at birth to my biological father and his wife…
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This reply was modified 4 years, 8 months ago by
Jacqueline.
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This reply was modified 4 years, 8 months ago by
Jacqueline.
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This reply was modified 4 years, 8 months ago by
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May 27, 2018 at 7:36 pm #11913
Debi Wilson
MemberWow, that is interesting also, Jackie!
Sure sounds like a genetic and a viral connection
To MS! -
June 20, 2018 at 6:16 am #12200
Christopher T.
ParticipantUnfortunately MS is multifactorial and highly complex. Even though EBV antibodies may be in higher concentrations in the CNS of people with multiple sclerosis, so are other viruses due to the breakdown of the epithelial junctions (the BBB) in many places. There are complex interactions going on that cause the development of MS, which may actually be related to certain types of metabolic dysfunction–one example which may be related to thyroid dysfunction, which can lead to blood brain barrier breakdown without causing hyper or hypo thyroidism. Even though viruses have been implicated in the etiology of multiple sclerosis, they are more then likely only a tiny player in MS pathology, and probably not the original cause of MS. It seems that immunosuppression is good in slowing the immune system from causing further damage from inflammatory response, and that’s why many of the disease modifying drugs seem to be good at delaying progression. But I wonder that MS might not be a strictly autoimmune disease, and that we may just be stopping the immune system from doing its job without actually getting to the root cause.
I believe MS comes from small genetic mutations (either congenital or evolutionarily over our lives currently), and from environmental insults which add to damage in conjunction with genetic ‘chinks in the armor.’ Those environmental insults could be from outside of ourselves, like pollution or toxins or radioactivity, or the envioronment inside ourselves, like gut flora and/or neurochemical excitotoxicity, etc. It will still take time to suss it all out as researchers are still mainly focused on the immunological aspects of neurodegeneration.
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June 20, 2018 at 6:54 am #12201
Christopher T.
ParticipantI apologize for my bad grammar–I was half asleep when I typed the above posted reply. It should read, more ‘than’ likely only a tiny player….
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June 20, 2018 at 8:47 am #12202
Ed Tobias
KeymasterThanks for the thoughtful analysis, Christopher, and welcome to the forums. Your info makes for a very interesting read.
We’d welcome your input on other topics that appear here.
BTW, no worries about “then”and “than.” I find mistakes in my own writing all the time which is why, when I write my columns, I put my writing aside and give it a final look several hours later. I always find something that I want to change before I send it to our editors. (As I did just now, changing “sent” to “send.” :-).
Ed
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June 20, 2018 at 11:49 am #12208
Debi Wilson
MemberVery interesting, Christopher. Thank-you for sharing your thoughts! MS is very complex and intertwined, that is for sure!
I agree with Ed and I hope you add input on more topics!
Debi
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January 26, 2019 at 5:24 am #15524
MODY
ParticipantI think something affected my immune system thru the digestive system especially I’ve read about a new study made a link between gut bacteria and MS so I started making [body cleansing] about 10 months ago and I really felt some significant improvements.
Regards
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January 26, 2019 at 11:03 am #15525
Debi Wilson
MemberThanks for that information MODY. That is interesting and great you are seeing good results!
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February 6, 2019 at 8:31 pm #15788
Linda
ParticipantI was one of the weird few who had chicken pox twice as a child, also had cold sores as long as I can remember (neither parents ever had them, so who gave them to me before kindergarten then????, hmmmm mom?). Had mono at 16. Dx with MS in my 40’s . Mother has MS, LUPUS, RA. Mothers sister died from complications of MS at 42. Grew up swimming in the Hudson River, NY. Wouldn’t recommend that today.
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February 7, 2019 at 9:36 am #15793
Jacqueline
ParticipantAhh yes, gut bacteria…I often now drink Bio-tiful Kefir, Riazhenka, dont know whether it is doing anything good for my gut but it is worth a try, and I would like to believe it is doing something good.
Quoting: ” The drink’s health benefits have been proclaimed across the world for centuries, and now modern science is able to tell us why: Kefir is packed with nutrients, including amino acids, enzymes, calcium, phosphorus, magnesium and B vitamins. It’s also rich with billions of gut-friendly bacteria. ”
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February 7, 2019 at 9:37 am #15792
Jacqueline
ParticipantI had chicken pox as a young child, then shingles roughly 4 or 5 years before PPMS diagnoses 4 years come this April…I now believe that illnesses lay dormant, as to what triggers them off, has yet to be sussed out…
Jackie
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